Table 1

Summary of trial team responses regarding intention to disseminate

Means of disseminationIntention to disseminate results to participants
YesNo
Active
Provision of web link to results74 (32%)
Postal letter44 (19%)
Patient information sheet37 (16%)
Clinic appointment23 (10%)
Lay patient summary16 (6.9%)
Patient choice of mode of delivery16 (6.9%)
PPI group10 (4.3%)
Newsletter5 (2.2%)
Email2 (0.9%)
Other (eg, face-to-face meetings)4 (1.7%)
Total 231 (18.8%)-
Passive
Trial linked staff (eg, discretion of study doctor)549 (55.4%)72 (41.6%)
Participant initiated request339 (34.2%)49 (28.3%)
Public domain (trial website)84 (8.5%)24 (13.9%)
Conference/scientific publication17 (1.7%)
Media1 (0.1%)
Public representative meeting1 (0.1%)
No reason stated24 (13.9%)
Other4 (2.3%)
Total 991 (80.5%) 173 (100%)
Unclear 9 (0.7%)-
TOTAL 1231 173
  • PPI, patient and public involvement.