Table 4

Constraints and number of mentions (total and by diagnostic group)

ConstraintsNF1PSCPAHMFSTotal N
Shared aspects named by two diagnostic groups
 Constraints in daily life3811
Shared aspects named by all four diagnostic groups
 Constraints in personal and social life497525
 Constraints in professional life943622
  • Numbers represent the total number of mentions and are displayed for each diagnosis individually as well as across all diagnostic groups; grey cells represent categories, which were mentioned at least once in a diagnostic group.

  • MFS, Marfan syndrome; NF1, neurofibromatosis type 1; PAH, pulmonary arterial hypertension; PSC, primary sclerosing cholangitis.