Table 3

Summary of study measures

MeasurePurpose
Phase I (non-ID participants only)
 Autism Quotient, AQ41 Measuring likelihood of ASD.
 Informant version of the Social Responsiveness Scale,second edition, SRS-A45
 Self-report and Informant versions of the Adult Social Behaviour Questionnaire, ASBQ46
 Self-report and Informant versions of the EuroQol-5D-5L, EQ-5D-5L47 Measuring quality of life.
 Basic information formCollecting information pertaining to patient demographics, as well as the 2014 Adult Psychiatric Morbidity Survey (APMS) mental illness and physical health conditions checklists.13
Phase I I
 Diagnostic Interview for Social and Communication Disorders, DISCO48 Establishing whether participant meets diagnostic criteria for ASDs.
 Autism Diagnostic Observation Schedule version 2, ADOS-249
 The Mental Illness Diagnoses and Treatment section of the 2014 APMS13 Establishing participant’s psychiatric and physical health comorbidities.
 The Physical Health Conditions section of the 2014 APMS13
 ASD interview subsection of version 3 of the Schedules for Clinical Assessment in Neuropsychiatry, ASD-SCAN-3Field testing of interview schedule
(for non-ID participants only).
 Stigma Questionnaire for people with Intellectual Disability, SQID50 Participants experience of stigma
(for ID participants only).
 Basic information formCollecting information pertaining to patient demographics, as well as the 2014 Adult Psychiatric Morbidity Survey (APMS) mental illness and physical health conditions checklists13 (for ID participants only, as this form is completed in phase I for non-ID participants).
  • ID, intellectual disability.