Table 2

Inclusion and exclusion criteria

Inclusion criteriaExclusion criteria
Individuals with a confirmed diagnosis of MND with a life expectancy of at least 1 year as reported by the clinical team
Carers, defined as ‘Any adult who looks after a family member, partner or friend with MND. The care they give is unpaid, and they have face-to-face contact with the person with MND at least 3 times a week’ (currently or within the last year). They may or may not be in receipt of carers allowance
Healthcare professionals working with individuals with MND, involved in the gastrostomy decision-making process or supporting patients with gastrostomy feeding
Able to communicate, either verbally or using other means, for example, using a communication aid, at phrase or sentence level
Unable to participate in English
<18 years
Individuals assessed as lacking capacity by the clinical team
Carers of individuals assessed as lacking capacity
  • MND, motor neuron disease.