Table 1

Definition of key terms as used in this review

TermDefinition
ContextContext was viewed as the backdrop to a person’s progressive journey following a diagnosis of dementia. More specifically, they were settings, structures, environments, public discourse, conditions, circumstances or specific universally experienced events (such as transitions in the care environment) where social relationships could be seen to directly influence outcomes either positively or negatively. Contexts triggered behavioural and emotional responses (ie, mechanisms) for both the individual with dementia and those people within their immediate social network (eg, family and friends).
MechanismsThe way in which people with dementia and those involved in their care (both professional and lay) respond to and reason about challenges presented by the progression of dementia. Mechanisms were triggered in specific contexts and led to changes in behaviour and decision making.
OutcomeObserved points from the literature that resulted from an interaction between specific mechanism and contexts. These points represent outcomes that were observed to be directly influenced by social capital and as such are potential targets for interventions that seek to harness the role of social capital in end-of-life care.
AgencyIs the capacity of individuals to act independently, to make their own choice and thus bear influence on their surroundings.
Agentic influenceThis is the influence exerted by the agent in question.
Cognitive social capitalSubjective interpretations of shared understandings held by a close network or group of people.
Structural social capitalThe presence of a network of access to people and resources both professional and lay.
Relational social capitalFeelings of trust shared by people within a social context.