Table 4

Participant characteristics

CharacteristicAutistic adults self-report formally diagnosed (n=221)Autistic adults self-report no formal diagnosis (n=32)Autistic adults informant-report (n=42)Carers
(n=102)
Non-autistic self-report (n=146)
Age mean (SD)41.8 (12.2)44.2 (8.1)32.5 (9.9)56.3 (11.2)43.7 (13.5)
Gender (%)
 Male86 (39)14 (44)34 (81)16 (16)29 (20)
 Female124 (56)17 (53)8 (19)85 (83)117 (80)
 Other11 (5)1 (3)01 (1)0
*Ethnicity (%)
 Caucasian194 (88)25 (78)38 (90)86 (89)122 (85)
 Other27 (12)7 (22)4 (9)11 (11)22 (15)
 Multilingual (%)26 (12)5 (16)06 (6)18 (12)
 †SEIFA decile (SD)6.18 (2.89)5.74 (3.09)6.58 (2.88)6.60 (2.78)7.01 (2.60)
†‡Rural/remoteness
 Major city146 (71)17 (55)32 (84)72 (73)114 (83)
 Inner regional44 (21)10 (32)5 (13)21 (21)19 (14)
 Outer regional12 (6)4 (13)1 (3)5 (5)5 (4)
 Remote/very remote4 (2)0000
§Living situation (%)
 Living alone58 (26)9 (28)3 (7)14 (14)26 (18)
 Living as couple95 (43)18 (56)4 (9)74 (75)105 (72)
 Living with parents31 (14)024 (57)05 (3)
 Living with other relatives3 (1)01 (2)6 (6)3 (2)
 Living with others20 (9)5 (16)8 (19)4 (4)5 (3)
 Other14 (6)02 (5)1 (1)2 (1)
¶Marital status (%)
 Single73 (33)7 (22)36 (86)4 (4)22 (15)
 Married66 (30)12 (37)4 (9)65 (66)90 (62)
 De facto17 (8)3 (9)08 (8)14 (9)
 Never married8 (4)3 (9)2 (5)2 (2)3 (2)
 Widowed1 (0)003 (3)2 (1)
 Divorced now single21 (9)3 (9)08 (8)9 (6)
 Divorced now remarried/de facto12 (5)2 (6)02 (2)2 (1)
 Separated7 (3)1 (3)02 (2)1 (1)
 Other16 (7)1 (3)04 (4)3 (2)
Educational status (%)
 Completed high school163 (76) n=21520 (64) n=3121 (51) n=4186 (88) n=98120 (86) n=139
 Vocational education61 (35) n=17416 (57) n=284 (11) n=3517 (17) n=9820 (16) n=127
 University education113 (65) n=17412 (43) n=281 (3) n=3559 (60) n=98107 (84) n=127
**Employment (%)
 Open employment116 (57)20 (69)6 (15)59 (60)104 (76)
 Student/other day activity38 (19)3 (10)24 (60)3 (3)17 (12)
 Retired, no volunteering8 (4)2 (7)2 (5)19 (19)6 (4)
 Homecare17 (8)3 (10)09 (9)9 (6)
 No activity22 (11)1 (3)8 (20)9 (9)1 (1)
  • *Ethnicity: carers, n=97; non-autistic (self-report), n=144.

  • †Autistic adults (diagnosis, self-report), n=209; autistic adults (no diagnosis, self-report), n=31; autistic adults (informant report), n=38; carers, n=99; non-autistic (self-report), n=138.

  • ‡Australian population is 70% major city, 18% inner regional, 9% outer regional, 1% remote, 1% very remote in the 2011 Census.120

  • §Carers’ living situation: n=99.

  • ¶Carers’ marital status: n=98.

  • **Employment: autistic adults (diagnosis, self-report), n=201; autistic adults (no diagnosis,self-report), n=29; autistic adults (informant report), n=40; carers, n=99; non-autistic (selfreport), n=137.

  • SEIFA, Socioeconomic Index for Areas.