Table 3

Main reasons recorded by research staff for exclusion by site

Reason for exclusion Site A Site B Site C
Study inclusion criteria not met or exclusion criteria identified*53 (21%)18 (11%)8 (11%)
No contact made64 (26%)28 (18%)12 (17%)
‘Unable or unwilling to participate’ recorded as reason132 (53%)114 (71%)51 (72%)
Total excluded24916071
  • *Inclusion criteria not met/exclusion criteria identified included person with dementia not living in the community, not having capacity to consent, not score 0.5–2 on clinical dementia rating scale18 or no family carer available to participate, a dyad participated in an earlier phase of the study or was participating in another intervention study or was unable to communicate fluently in English.