Table 1

Interviewee demographic characteristics

IdentifierGenderAge range (years)CountryPrior participatory experience
COS developmentDelphi survey
P1COS1Male65–74UKNoNo
P2COS1Female≥75UKNoNo
P3COS2Female35–44UKNoNo
P4COS3FemaleUndisclosedCanadaYesYes
P5COS2Male45–54UKNoNo
P6COS3Female55–64CanadaYesYes
P7COS4Female55–64UKNoNo
P8COS4Female55–64NetherlandsNoNo
P9COS5Female35–44IrelandNoNo
P10COS6Female45–54IrelandYes*Yes
P11COS7Male55–64UKNoNo
P12COS7Female65–74UKNoNo
P13COS2Female55–64UKNoNo
HP1COS1Female45–54CanadaNoYes
HP3COS4Male45–54SpainYesYes
HP4COS2Female35–44SingaporeYesYes
HP5COS4Male35–44UKYesYes
HP6COS5Female55–64UKNo†No
HP7COS5Female25–34IrelandNo‡No
HP8COS5Female35–44UKNo†No
HP9COS5Female65–74IrelandYesYes
HP10COS6Female35–44ItalyNoNo
HP11COS6Male65–74UKYesYes
HP12COS6Female55–64AustraliaYesYes
  • *Interviewee was also the patient research partner of the core outcome set (COS) study they were interviewed in relation to.

  • †Two health professionals stated awareness/knowledge of COS and Delphi survey but had not participated previously.

  • ‡One health professional was involved in an earlier phase of the COS study for which they participated in the Delphi survey.