Table 1

Measures used in Trans20 in parent, patient and in-clinic questionnaires

ConstructInstrumentReferenceParent Q’airePatient
Q’aire
In-clinic
Q’aire
Age range*
Demographics and history
 DemographicsIntroducing youT20 PT,
27 28
Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: all ages—no age restrictions
 Medical historyMedical and developmental historyT20 PTParent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 18+
Gender
 Gender identity and supportsAbout your gender—gender sliderT20 PTAll ages—no age restrictions
 Social transitioningAbout socially transitioningT20 PTParent report: 0–7
Patient report: 8+
 VoiceAbout your voice32 3312+
 Gender role behaviours and gender identityGender Identity Questionnaire29<=12
 Gender dysphoriaSingle item measuring recent gender-related distressT20 PTAll ages—no age restrictions
 Gender dysphoria: gender preoccupation and gender stabilityGender Preoccupation and Stability Questionnaire3011+
 Body imageBody Image Scale3112+
 Chest dysphoriaChest Dysphoria Scale1512+ (birth-assigned females)
 Hormone treatment experiences‡Medical intervention treatment effects and satisfaction. Tanner’s Sexual Maturation ScaleT20 PT,
71–73
12+ for those reporting that they have started puberty suppression or gender affirming hormones
Mental health
 Internalising and externalising behaviourYouth Self Report3411–18
Preschool Child Behavior Checklist351.5–5
School-age Child Behavior Checklist346–18
 Anxiety symptomatologySpence Children's Anxiety Scale—Preschool373–5
Spence Children's Anxiety Scale—Parent report386–18
Spence Children's Anxiety Scale—Self report39–417–18
 Eating disordersBranched Eating disorder Test4812+
 Depressive symptomatologyShort Mood and Feelings Questionnaire36Parent report: all ages—no age restrictions while patient at RCHGS†.
Patient report: 7+
 Depression, anxiety and stressDASS214218+
 Social phobiaSocial Phobia Scale4318+
 Resilience: pride and connectednessThe Gender Minority Stress and Resilience Measure4412+
 ResilienceThe Brief Resilience Scale458+
 Self-harmSelf-harm questions based on Hawton et al (2002)4612+
 SuicidalityColumbia-Suicide Severity Rating Scale4712+
 Autism features§Social Responsiveness Scale
2: School-age form
504–18
School functioning
 School attendanceAbout school (school type, attendance)52Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 18+
 Academic performanceSchool-age Child Behavior Checklist346–18
 School connectednessPsychological Sense of School Membership Survey5112–18
Bullying and discrimination
 BullyingGatehouse Bullying Scale538–18
 DiscriminationAdapted from the Victorian Population Health Survey5418+
Family functioning
 Family functioningFamily Assessment Device—General Functioning scale61 62Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 12+
Quality of life
 Quality of life (patient)Child Health Utility 9D55 56Parent report: ≤5
Patient report: 6+
AQoL-4D57 5818+
 Parental quality of lifeAQoL-4D57 58All ages—no age restrictions while patient at RCHGS†
Drug use and sexual health
 Health risk behavioursTobacco, alcohol and drug use63–6612+
 SexualityAttraction and relationship questions. Adapted from the Victorian Population Health SurveyT20 PT,
54
12+
Clinical experiences
 Discharge status‡Reasons for discharging from RCHGST20 PTFor those discharged from RCHGS
Parent report: ≤11
Patient report: 12+
 Experiences of care‡RCHGS experiences of care67–70Parent report: all ages—no age restrictions while patient at RCHGS†
Patient report: 12+
  • *Age range refers to the age of TGD youth at which questionnaires are asked of either the TGD youth and/or their parent.

  • †Not administered to parent if young person is aged 18 years (or older) and discharged from RCHGS.

  • ‡Only asked at follow-up assessments.

  • §Only asked at initial assessment.

  • AQoL, The Assessment of Quality of Life; DASS21, Depression Anxiety Stress Scales-21; Q’aire, Questionnaire; TGD, transgender and gender diverse; T20 PT, Trans20 project team devised questions.