Table 6

Health professionals’ views/recommendations for training for non-genetic clinicians

Training typeIllustrative quote
Medical school“Yeah. I think in the medical school.” (Participant 11, non-genetic clinician)
Nursing curriculum“Well I think it will be part of the curriculum in the future. It will just have to become part of nursing curriculum.” (Participant 8, consenter)
Online training“…the actual genetic concepts don’t necessarily need to be in person they could be done with online modules” (Participant 6, consenter)
Shadowing“you shadow a consultant or a genetic counsellor or someone before you get signed off to go and consent on your own…So when you do the online training, it gives you the knowledge but then when you're doing it practically, it gives you the ability to be able to speak to the patients, answer their questions as the PC doesn’t speak to you, doesn’t throw in little scenarios whereas in real life we know it doesn’t go that straightforward, so doing it with someone and having somebody there actually works” (Participant 10, consenter)
Role playing“talking to a patient, the counselling aspect of it, the understanding of the way that people deal with bad news and understand risk I think is better done in person. …the patient interacting side of it has to be done through face to face training…” (Participant 6, consenter)
Day or half-day training“Yeah, I mean there are all sorts of courses available. The vast majority of clinicians haven’t got time to do it and so they’re more likely to come to a half day or a 1 day training course than they are to sit down and do some on line training. [some clinicians] haven’t got the time to take a year or two out to do a Masters, they want something much more quick and practical and off the shelf and ready now, that just gets them up to speed so that they know enough knowledge to know which test to offer to whom and when.” (Participant 14, genetic clinician)
“I guess an open training session would be useful, in terms of something like an FAQ sort of session as to what are the expected questions from families and you know how to [answer] them, that sort of a training would be helpful.” (Participant 15, non-genetic clinician)
Training should be mandatory/national Standard/certification“Mandatory is a way of keeping on top of who’s actually been trained, when they were trained and you get your refresher so, yeah, you do your basic, you get your certificate.” (Participant 10, consenter)
Genetic clinicians train non-genetic colleagues/buddying systems and genomics champions“So what we’re trying to set up is a kind of a buddying system where we will try and have clinical genetics working with sort of genomics champion in that speciality…. So that the genomics champion from the speciality who will put themselves forward as a sacrificial lamb, and the genetics consultant or genetics counsellor with experience, will kind of discuss and agree what the steps are with feeding that information back to patients. … So what’s happened is our genetics teams have gone to the cancer MDTs, disease specific cancer MDTs and they’re trying to help people understand about the difference between somatic mutations and germ line mutations. And whether they are clinically actionable… And I think that is working quite well and it’s quite labour intensive for the genetics team, but they are you know, working with particular oncologists who want to learn all about this. It’s that kind of partnership between genetics and then somebody who’s prepared to be the genomics champion from the speciality.” (Participant 9, genetic clinician)
  • FAQ, frequently asked questions; MDT, multidisciplinary team.