Stage 1b—Qualitative interviews | |
| Established diagnosis of epilepsy, or an informal carer for someone with epilepsy Age≥18 years (no upper age limit) Have visited ED in the past 12 months for epilepsy (as reported by the patient)* Able to provide informed consent and communicate in English
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Stage 2—Discrete choice experiments | |
Group 1 Patients | Clinically confirmed diagnosis of epilepsy (for any duration) Any epilepsy syndrome and any types of focal or generalised seizures Currently being prescribed antiepileptic medication Age≥18 years (no upper age limit) Have visited ED in the past 12 months for epilepsy Able to provide informed consent and independently complete a questionnaire in English Lives in the North West of England
| Severe current psychiatric disorders (eg, acute psychosis) Life-threatening medical illness Resides within a care or nursing home or of no fixed abode
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Carers | A significant other to a person with epilepsy (eg, family member, friend) who the patient identifies as providing informal support or self-identifies themselves if the patient has a substantial intellectual disability The person with epilepsy they care for has visited ED in the past 12 months Age≥16 years (no upper age limit) Able to provide informed consent and independently complete a questionnaire in English Lives in the North West of England
| |
Group 2 Patients | Clinically confirmed diagnosis of epilepsy (for any duration) Any epilepsy syndrome and any types of focal or generalised seizures Currently being prescribed antiepileptic medication Age≥18 years (no upper age limit) Has not visited ED in the past 12 months, but has had a seizure with loss of awareness in this period Able to provide informed consent and independently complete a questionnaire in English Lives in the North West of England
| Severe current psychiatric disorders (eg, acute psychosis) Life-threatening medical illness Resides within a care or nursing home or has no fixed abode
|
Carers | A significant other to a person with epilepsy (eg, family member, friend) who the patient identifies as providing informal support or self-identifies themselves if the patient has a substantial intellectual disability The person with epilepsy they care for has not visited ED in the past 12 months, but had a seizure with loss of awareness in this period Age≥16 years (no upper age limit) Able to provide informed consent and independently complete a questionnaire in English Lives in the North West of England
| |