Table 1

Included Patient Reported Measures

NameCountry of studyPurpose of PRMStructure of PRMMaximum scoreItems relevant to treatment burdenTreatment burdens in PRM
SASC 16 UKPatient satisfaction with stroke services2 domains (inpatient, outpatient), 13 items3912Interactions with healthcare staff (kindness, personal care, communication); information provision about illness/services available after discharge; type, amount and adequacy of hospital treatments and therapies; preparation for return home; access to social and medical support in the community; adequacy of outpatient and ambulance services.
Stroke-PROM17 ChinaEffects of stroke on patients participating in drug trials4 domains (physical, psychological, social, therapeutic),
46 items
2304Satisfaction with effects of treatments and services received.
BAPAS18 FrancePatient perceived barriers to regular physical exercise after stroke2 subscales (behavioural barriers, physical barriers), 14 items707Information provision; transport problems; lack of motivation; fear of another stroke; fear of falling; lack of finances; activity not suited to individual (patient not sporty).
WHOQOL-10019 TurkeyQuality of life6 domains, 24 facets, 100 items5004Accessibility and quality of health and social care.
P-QPD20 SwedenPatient perceived involvement in discharge planning3 subscales (information, medical treatment, goals and needs),
14 items
5614Information provision on illness/tests/examinations/treatments/medication/rehabilitation; ability to ask questions; ability to participate in discussions about treatments/goals/social support/rehabilitation needs after discharge; participation in working out discharge plan.
Chao-PC21 UKPatient perceived continuity of care2 domains, 23 items11517Doctor’s knowledge of medical history and family; location of medical care; continuity of doctor; fragmentation of care; relationship with doctor; communication with doctor; access to other specialist; emergency care; trust in doctor.
  • BAPAS, Barriers to Physical Activity after Stroke scale; PRM, patient-reported measure; WHOQOL-100, WHO Quality of Life-100.