Table 1

Demographic characteristics of participating (A) patients, and (B) caregivers

(A) Patients
CharacteristicFrequency (%) n=23
Female13 (57)
Age (years)
 65–740
 75–848 (35)
 85 and more15 (65)
Education
 No education0
 Elementary5 (22)
 High school11 (48)
 College2 (8.7)
 University5 (22)
Income (US$)
 0–24 99912 (52)
 25 000–34 9996 (26)
 35 000–49 9991 (4.3)
 50 000–74 9993 (13)
 75 000–99 9991 (4.3)
 100 000–150 0000 (0)
 150 000+0 (0)
Health literacy
Self-reported frequency of having someone helping read medical materials
 (0) Never7 (30)
 (1) Occasionally4 (17)
 (2) Sometimes4 (17)
 (3) Often4 (17)
 (4) Always4 (17)
 Mean (±SD)1.7 (±1.5)
Self-reported confidence with forms
 (0) Extremely4 (17)
 (1) Quite a bit4 (17)
 (2) Somewhat3 (13)
 (3) A little bit3 (13)
 (4) Not at all9 (39)
 Mean (±SD)2.4 (±1.6)
Self-reported problems learning about medical condition because of difficulty reading medical materials
 (0) Never5 (22)
 (1) Occasionally7 (30)
 (2) Sometimes2 (8.7)
 (3) Often4 (17)
 (4) Always5 (22)
 Mean (±SD)1.9 (±1.5)
 Marital status
  Single1 (4.4)
  Married or common-law partner11 (48)
  Widow11 (48)
  Separated0 (0)
  Divorced0 (0)
  Living with caregiver, n (%)11 (48)
(B) Caregivers
CharacteristicFrequency (%) n=27
Female15 (56)
Age (years)
 24 and less0 (0.0)
 25–440 (0.0)
 45–6413 (48)
 65–8411 (41)
 85+3 (11)
Education
 No education0 (0.0)
 Elementary2 (7.4)
 High school8 (30)
 College9 (33)
 University8 (30)
Self-reported frequency of having someone helping read medical materials
 (0) Never16 (59)
 (1) Occasionally4 (15)
 (2) Sometimes5 (19)
 (3) Often2 (7)
 (4) Always0 (0.0)
 Mean (±SD)0.7 (±1.0)
Self-reported confidence with forms
 (0) Extremely16 (59)
 (1) Quite a bit8 (30)
 (2) Somewhat1 (4)
 (3) A little bit0 (0.0)
 (4) Not at all2 (7)
 Mean (±SD)0.7 (±1.1)
Self-reported problems learning about medical condition because of difficulty reading medical materials
 (0) Never9 (33)
 (1) Occasionally10 (37)
 (2) Sometimes6 (22)
 (3) Often0 (0.0)
 (4) Always2 (7)
 Mean (±SD)1.11 (±1.1)
Relationship with the patient
 Family member26 (96)
 Friend1 (4)
 Professional0 (0.0)
 Other0 (0.0)
Approximate number of years in the care of the patient, mean (±SD)10.3 (±14)