Table 4

Caregivers’ report of the value of Decision Boxes per round: ratings based on the patient version of the Information Assessment Method40

Frequency (n/N)
Round 1Round 2Round 3All round
Relevance
 This information is…
   … totally relevant3/116/102/611/27
   … relevant8/114/103/615/27
   … somewhat relevant0/110/101/61/27
   … irrelevant0/110/100/60/27
Understanding
 They understood this information…
   … completely4/118/103/615/27
   …mostly6/112/103/611/27
   …poorly1/110/100/61/27
   …not at all0/110/100/60/27
Cognitive impact of the information
 They learnt something new2/115/105/612/27
 This information allowed them to confirm what they do, or did6/115/102/613/27
 They are reassured1/114/104/69/27
 They were reminded of something they already knew3/113/102/68/27
 They are motivated to learn more4/116/102/612/27
 There is a problem with the presentation of this information4/112/101/67/27
 They disagree with the content of this information2/110/100/62/27
 This information is potentially harmful1/110/100/61/27
Information use
 They will use this information7/119/106/622/27
 This information will…
   …help them improve their understanding of a particular issue and make a decision1/72/94/67/22
   …help them do something when they did not know what to do0/70/91/61/22
   …convince them to do something that they already wanted to do2/72/93/67/22
   …allow them to change the way they do something0/71/92/63/22
   …allow discussing something with someone else (a relative or a healthcare professional)2/76/92/610/22
Expected benefits of the information
 They expect the information to help them…
   …be less worried0/74/94/68/22
   …be better equipped to discuss something with someone else (a relative or a healthcare professional)6/77/94/617/22
   …have more confidence in deciding something with someone else (a relative or a healthcare professional)2/73/92/67/22
   …handle an issue1/73/92/66/22
   …prevent an issue (or prevent it from getting worse)2/73/96/611/22
 They expect no benefits0/70/90/60/22
Expected consequences
 They expect that the use of this information can have a negative impact on their well-being of their health0/71/90/61/22