Domain measures | Reported by | Postinjury | |||||
Day0 | Day≤3 | Day3–7 | Day7*a | Day7-45a | Day45a | ||
Variables and measures collected as part of routine clinical care | |||||||
Acute signs and symptoms | |||||||
Injury report form | Care provider | X | |||||
Acute mental status | |||||||
Standardized Assessment of Concussion* | Care provider | X | |||||
Neuropsychological functioning | |||||||
Cogstate Computerized Cognitive Assessment Tool*† | Care provider | X | X | X | |||
Balance | |||||||
Balance Error Scoring System* | Care provider | X | |||||
Variables and measures included in the daily survey | |||||||
Physical rest | |||||||
ActiGraph-Energy Expenditure/Sleep | Y | ||||||
Daily Physical and Cognitive Rest Survey‡ | Y | ||||||
Cognitive rest | |||||||
Narrative Clip-Cognitive Rest Video Clips | Y | ||||||
Daily Physical and Cognitive Rest Survey‡ | Y | ||||||
Pain | |||||||
Pain intensity rating | Y | ||||||
Postconcussive symptoms | |||||||
Post-Concussive Symptom Scale* | Y | ||||||
Variables and measures included in the three assessments | |||||||
Functional outcomes | |||||||
Functional Disability Inventory* | Y and P | X | X | X | |||
Pediatric Quality of Life Inventory* | Y and P | X§ | X | X | |||
Potential confounders | |||||||
Premorbid child functioning | |||||||
Behavior Assessment System for Children* | P | X§ | |||||
Concussion risk | Y | X | |||||
Demographic information and postinjury events | Y and P | X | X | X |
Day0: Day of injury.
Day ≤3: Date of 1st assessment (within 72 hours of injury).
Day7*: Date of second assessment (between 7–10 days after injury).
Day45a: Date of third assessment.
*Adopted in the Common Data Elements for Pediatric Traumatic Brain Injury. Administered at any time during recovery.
†Evaluated by physician during a clinic visit(s) as needed as part of routine care.
‡Data collection until the acute symptoms resolve.
§Retrospective ratings by parents at the first assessment to assess premorbid functioning.
P, parent; Y, youth.