Table 3

Before and after results

Families approached by subsequent mode of consent: deceased organ donation WalesRetrospective beforeProspective after implementation of the soft opt-out on 1 December 2015 
April 2012–March 2013
12 months
April 2013–March 2014
12 months
April 2014–March 2015
12 months
December 2015–March 2015
4 months
April 2016–March 2017
12 months
April 2017–May 2017
2 months
Total December 2015–May 2017
18 months
Total families approached: number of cases 1611691535414110205
Total cases that met the criteria for a known decision or having their consent deemed.
Excludes family consent (child, not Welsh resident, lacks mental capacity)
N/AN/AN/A51/54 (94.4%)124/141 (87.9%)7/10 (70.0%)182/205 (88.8%)
Expressed consent56/161 (34.8%)
Registered opt-in on ODR
48/56 (85.7%)
Verbally expressed opt-in 7/56 (12.5%)
Other
1/56 (1.8%)
62/169 (36.7%)
Registered opt-in on ODR
52/62 (83.9%)
Verbally expressed opt-in 10/56 (17.8%)
48/153 (31.4%)
Registered opt-in on ODR
43/48 (89.6%)
Verbally expressed opt-in 5/48 (10.4%)
21/51 (41.2%)76/124 (61.3%)5/7 (71.4%)102/205 (49.7%)
Registered opt-in on ODR 73/102 (71.6%)
Verbally expressed opt-in 29/102 (28.4%)
Deemed consentN/AN/AN/A13/51 (25.5%)31/124 (25.0%)2/7 (28.6%)46/205 (22.4%)
Family consent105/161 (65.2%)107/169 (63.3%)105/153 (68.6%)3/51 (5.9%)17/124 (13.7%)3/10 (30.0%)23/205 (11.2%)
Total patient opt-outs N/AN/AN/A17/51 (33.3%)17/124 (13.7%)034/205 (16.5%)
 Registered opt-out on ODRN/AN/AN/A3/17 (17.6%)5/124 (4.03%)08/34 (23.5%)
 Verbally expressed opt-outN/AN/AN/A14/17 (82.3%)12/124 (9.7%)026/34 (76.5%)
Mode of consent ascertained (consent rate)
Total consent ascertained* 81/161 (50.3%)91/169 (53.8%)70/153 (45.8%)29/54 (53.7%)90/141 (63.8%)6/10 (60.0%)125/205 (61.0%)
Total consent for cases that met the criteria for a known decision or having their consent deemed N/AN/AN/A27/51 (52.9%)85/124 (68.5%)5/7 (71.4%)117/182 (64.2%)
 Expressed consent48/56 (85.7%)53/62 (85.5%)37/48 (77.1%)18/21 (85.7%)66/76 (86.8%)5/5 (100%)89/102 (87.2%)
 Deemed consentN/AN/AN/A9/13 (69.2%)19/31 (61.2%))028/46 (60.8%)
 Family consent33/105 (31.4%)38/107 (35.5%)33/105 (31.4%)2/3 (66.6%)5/17 (29.4%)1/3 (33.3%)8/23 (34.7%)
Overrides by family members
Total overrides by family members 8/161 (5%)9/169 (5.3%)11/153 (7.2%)7/54 (12.9%)22/141 (29.1%)2/10 (20%)31/205 (15.1%)
 ODR overrides8/48 (16.7%)7/52 (13.5%)10/43 (23.3%)12/73 (16.4%)
 Other expressed overrides02/10 (20%)1/5 (20%)1/29 (3.4%)
 Deemed consentN/AN/AN/A18/46 (39.1%)
Proceeding donors by mode of consent
 Expressed consent: verbal or ODR registration26/48 (51.4%)33/53 (62.2%)28/37 (75.7%)13/18 (72.2%)43/66 (65.1%)4/5 (80.0%)60/89 (67.4%)
 Deemed consentN/AN/AN/A9/9 (100%)11/19 (57.9%)020/28 (71.4%)
 Family consent24/33 (72.3%)21/38 (55.3%)26/33 (78.8%)2/2 (100%)4/5 (80.0%)1/1 (100%)7/8 (87.5%)
Total 52/81 (64.2%)54/91 (59.3%)60/70 (85.7%)24/29 (82.7%)58/90 (64.4%)5/6 (83.3%)87/125 (69.6%)
Organs donated by mode of consent
 Expressed consent: verbal or ODR registration891081004413617197
 Deemed consentN/AN/AN/A3139070
 Family consent8869781210426
Total 1771771788718521293
Organs transplanted by mode of consent
 Expressed consent: verbal or ODR registration8397873611615167
 Deemed consentN/AN/AN/A2633059
 Family consent826362129223
Total 1651601497415817249
Comparative total consent ascertained rate for England 57.9%59.6%58.5%62.5%
Comparative donor numbers Figures shared by Welsh Government for 21 months pre and post8 21 months pre—10121 months post—104
  • *Before and after change in consent rates was statistically sifnificant but could not be attributed to the new Welsh soft opt-out system when rest of the UK increases in organ donation consent rates over the same time period are factored in.