Outcome/variable | Measurement tool/data source | Validated | Screener | Baseline | 6 months |
Patients | |||||
Supportive/palliative care needs | SPICT | ✓ | ✓ | ||
Previous ACP | ACP Screening Tool | ✓ | |||
Contact information | Purpose designed questionnaire | ✓ | |||
Demographics | Purpose designed questionnaire | ✓ | |||
Comorbidity | CCI | ✓ | ✓ | ||
Health related quality of life | SF-20 | ✓ | ✓ | ✓ | |
Assessment of care for chronic conditions | PACIC | ✓ | ✓ | ✓ | |
ACP discussion sessions* | Audit of ACP discussion sessions* | ✓ | |||
ACP in the patient records | Audit of hospital records | ✓ | |||
Hospital/ED admissions | Audit of hospital records; data linkage | ✓ | |||
Ambulance service utilisations | Data linkage | ✓ | |||
Health services utilisation | Data linkage | ✓ | |||
Deaths | Data linkage | ✓ | |||
Caregiver | |||||
Contact information | Purpose designed questionnaire | ✓ | |||
Demographics | Purpose designed questionnaire | ✓ | |||
Health related quality of life | SF-20 | ✓ | ✓ | ✓ | |
Caregiver burden | ZBI-12 | ✓ | ✓ | ✓ | |
Clinical staff | |||||
Contact information | Purpose designed questionnaire | ✓ | |||
Demographics | Purpose designed questionnaire | ✓ | |||
ACP attitudes, knowledge, confidence | Staff survey | ✓ | ✓ | ✓ |
*Intervention group only; CCI: Charlson Comorbidity Index;23 PACIC: Patient Assessment of Chronic Illness Care;26 SF-20: 20-Item Short Form Health Survey;24 25 SPICT: Supportive and Palliative Care Indicators Tool;15 ZBI-12: Zarit Burden Short Form Interview.27
ACP, advance care planning; ED, emergency department.