Table 1

Elements of ACP interventions in RCT

Intervention group (facilitated ACP)Control group (current standard care)
Written information on ACP:
  • ACP brochure produced by NSW Health18

  • ACP workbook endorsed by NSW Health19

  • Enduring Guardianship NSW booklet produced by the Public Guardian Office of the NSW Government Department of Attorney General & Justice20

  • Statement of Values and Wishes completed on behalf of the patient by their person responsible (when the person is unable to develop an ACD) and supplemental information for families

Procedures, activities, processes delivered by ACP coordinators or ACP trained outpatient clinics staff:
  • Provision of personalised information on ACP

  • Facilitation of ACP discussions with patients, caregivers, family and relevant health professionals

  • Assistance in completing appropriate ACP documents

  • Referral to relevant local legal services for witnessing as required

  • Organising and facilitating meetings and/or teleconferences with clinic staff, GPs and other healthcare professionals involved in patient’s care to discuss the patient’s care and their wishes

  • Assistance with dissemination of ACP documents on completion that may include upload to LHD record system, national eHealth record (contingent on LHD and national eHealth improvements during the study period) and forwarding the document to patient’s GP

Written information on ACP:
  • ACP brochure produced by NSW Health18

  • ACP workbook endorsed by NSW Health19

  • Enduring Guardianship NSW booklet produced by the Public Guardian Office of the NSW Government Department of Attorney General & Justice20

  • Statement of Values and Wishes and supplemental information for families used for families to develop a plan (when the person is unable to develop an ACD)

  • ACP, advance care planning; LHD, Local Health District; NSW, New South Wales; RCT, randomised controlled trial.