Table 2

Summary of informal carer data collected, as assessed by informal carers, outcome measures and time schedule

Data collected and tool usedBaselineAt 1 monthAt 6 months or death
Socio-demographicsAge, gender, ethnicity, existing medical conditionsx
Service use in the prior monthClient Service Receipt Inventory50 Calculates service and total care costsxxx
Quality of life of the carerEQ-5D-5Lxxx
Satisfaction with careSWC-EOLD (Satisfaction with Care at the End-of-Life in Dementia)34 xxx
ICECAP Close Person Measure of health economic evaluationHealth economic evaluation using ICECAP-CPMxxx
ICECAP Close Person Measure of health economic evaluationHealth economic evaluation using ICEPCAP-CPM completing using Think Aloudxxx