Table 1

Description of questionnaires

Kidney Disease Quality of life-36
A 36-item health-related quality of life (HRQoL) measure designed for patients undergoing dialysis, derived from the KDQOL-SF.
Three specific dimensions:
(1) signs and symptoms, (2) burden of kidney disease and (3) effects of kidney disease and a generic core derived from the SF-12 (physical and mental scales).
Overall scores range from 0 to 100, with higher scores indicating better HRQoL52–55
Kidney Disease Quality of life-SF
An 80-item HRQoL measure designed for patients undergoing dialysis which includes the SF-36 as a generic core (physical and mental scales) supplemented with eight kidney disease-targeted dimensions and three additional QoL dimensions.
Scores range from 0 to 100 for each dimension with higher scores indicating better HRQoL52 56 57
Integrated Patient Outcome Scale-Renal
IPOS-Renal is a short measure (11 questions), combining the most common symptoms renal patients experience plus additional items from IPOS on concerns beyond symptoms, such as information needs, practical issues, family anxiety33