Themes identified from stakeholder interviews and patient FGs
| Semistructured interviews with PSs | ||||
| PS Q1. What are your thoughts on the existing auditory implant registries available? | T1a. Existing registries available | T1b. Existing registries are limited | ||
| PS Q2. Do you think a national registry of auditory implants will be of benefit? | T2a. Improve safety and quality of care | T2b. Promote research and innovation | T2c. Facilitate commissioning and guideline development | T2d. Help patient decision-making |
| PS Q3. What do you think the main purpose or goal of the registry should be? | T3a. To improve the quality and safety of care | |||
| PS Q4. How should the registry be led/who should make the decisions? | T4a. Have steering committee | |||
| PS Q5. How should the registry be managed/maintained? | T5a. Dedicated management team | T5b. Robust IT systems to verify data | ||
| PS Q6. Broadly speaking, what do you think should be included in the dataset? | T6a. Registry dataset | T6b. Quality of life data | ||
| PS Q7. What are the main challenges of establishing a registry? | T7a. ‘Buy-in’ and data completion | T7b. Resource heavy | T7c. Registry governance | |
| PS Q8. How can we overcome these challenges? | T8a. Engage with opinion leaders | T8b. Registry development and design | T8c. Make it compulsory | T8d. Make it clearly useful |
| PS Q9. Should patients be involved in the registry and if so how? | T9a. Leadership and development | T9b. Accessing the registry | T9c. Entering data | |
| PS Q10. Who should own the data of the registry? | T10a. Independent national body | |||
| PS Q11. How should we fund the registry? | T11a. Multiple sources | T11b. Levy on all implants used | ||
| PS Q12. Should we publish data on specific surgeons and hospitals? | T12a. Wait until the registry is established | |||
| PS Q13. Overall what do you think is the most important factor for making a registry successful? | T13a. Data completeness | |||