Table 3

Themes identified from stakeholder interviews and patient FGs

Semistructured interviews with PSs
PS Q1. What are your thoughts on the existing auditory implant registries available?T1a. Existing registries availableT1b. Existing registries are limited
PS Q2. Do you think a national registry of auditory implants will be of benefit?T2a. Improve safety and quality of careT2b. Promote research and innovationT2c. Facilitate commissioning and guideline developmentT2d. Help patient decision-making
PS Q3. What do you think the main purpose or goal of the registry should be?T3a. To improve the quality and safety of care
PS Q4. How should the registry be led/who should make the decisions?T4a. Have steering committee
PS Q5. How should the registry be managed/maintained?T5a. Dedicated management teamT5b. Robust IT systems to verify data
PS Q6. Broadly speaking, what do you think should be included in the dataset?T6a. Registry datasetT6b. Quality of life data
PS Q7. What are the main challenges of establishing a registry?T7a. ‘Buy-in’ and data completionT7b. Resource heavyT7c. Registry governance
PS Q8. How can we overcome these challenges?T8a. Engage with opinion leadersT8b. Registry development and designT8c. Make it compulsoryT8d. Make it clearly useful
PS Q9. Should patients be involved in the registry and if so how?T9a. Leadership and developmentT9b. Accessing the registryT9c. Entering data
PS Q10. Who should own the data of the registry?T10a. Independent national body
PS Q11. How should we fund the registry?T11a. Multiple sourcesT11b. Levy on all implants used
PS Q12. Should we publish data on specific surgeons and hospitals?T12a. Wait until the registry is established
PS Q13. Overall what do you think is the most important factor for making a registry successful?T13a. Data completeness