Table 1

List of data sources retained in the final inventory (by year)

Data source nameCountryTypeType of careStart date
Finnish National RegistriesFinlandRecord linkage systemMixed1964
Swedish National RegistriesSwedenRecord linkage systemMixed1970
Danish National and Regional RegistriesDenmarkRecord linkage systemMixed1977
The electronic Data Research and Innovation ServiceScotlandRecord linkage systemMixed1981
Clinical Practice Research DatalinkUKElectronic medical recordsPrimary care1987
QResearchUKElectronic medical recordsPrimary care1989
Information System of Parc de Salut del MarSpainElectronic medical recordsPrimary care1990
Medicines Monitoring Unit ScotlandScotlandRecord linkage systemMixed1990
PHARMO Database NetworkNetherlandsRecord linkage systemMixed1990
QuintilesIMS Disease AnalyserGermanyElectronic medical recordsMixed1992
Integrated Primary Care Information DatabaseNetherlandsElectronic medical recordsPrimary care1995
Agencia Regionale di Sanita Tuscany databaseItalyClaimsSecondary care1996
Norwegian RegistriesNorwayRecord linkage systemMixed1997
QuintilesIMS Disease AnalyserFranceElectronic medical recordsPrimary care1997
Region Emilia Romagna DatabaseItalyClaimsSecondary care1997
Hospital Information System—LazioItalyClaimsSecondary care1998
Icelandic RegistriesIcelandRecord linkage systemMixed1998
Pedianet DatabaseItalyElectronic medical recordsPrimary care1998
Securite Sociale de l’Assurance MaladieFranceClaimsMixed1999
Lombardia Health DatabaseItalyElectronic medical recordsSecondary care2000
QuintilesIMS Longitudinal Patient Database (LPD)ItalyElectronic medical recordsPrimary care2000
QuintilesIMS LifeLink: Hospital Disease Database—BelgiumBelgiumElectronic medical recordsSecondary care2001
QuintilesIMS LPD Health Search DatabaseFranceElectronic medical recordsMixed2001
Base de Datos para la Investigación Farmacoepidemiológica en Atención PrimariaSpainElectronic medical recordsPrimary care2002
Caserta DatabaseItalyClaimsPrimary care2002
The Health Improvement NetworkUKElectronic medical recordsPrimary care2002
German Pharmacoepidemiological Research DatabaseGermanyClaimsMixed2004
Echantillon Généraliste de BénéficiairesFranceClaimsMixed2006
QuintilesIMS LPD Health Search Database LongitudinalSpainElectronic medical recordsMixed2006
The Information System for the Development of Research in Primary CareSpainElectronic medical recordsPrimary care2006
VEKTISNetherlandsClaimsMixed2006
Secure Anonymised Information LinkageWalesRecord linkage systemMixed2007
National Health FundPolandClaimsMixed2008
Hospital Treatment InsightsUKRecord linkage systemSecondary care2010