Table 1

Participant characteristics

PseudonymAgeCurrent or past board memberNo of years as a board memberHighest level of educationSelf-reported diagnosis
Victoria57Current2 yearsBelow university degreeInflammatory arthritis
HeatherUnavailablePastUnavailableAt least one university degreeOsteoarthritis; inflammatory arthritis
Hannah67Current9 monthsBelow university degreeOsteoarthritis; inflammatory arthritis
Chloe29Current1 monthAt least one university degreeInflammatory arthritis
Irene52Current1 year 5 monthsBelow university degreeInflammatory arthritis
Madeleine62Past8 yearsAt least one university degreeOsteoarthritis
Jessica52Current3 yearsAt least one university degreeInflammatory arthritis
Jill62Current3 yearsBelow university degreeOsteoarthritis; inflammatory arthritis
Jan64Current7 yearsBelow university degreeOsteoarthritis; inflammatory arthritis
Julie61Current4 years 9 monthsBelow university degreeOsteoarthritis
Marie58Current2 yearsAt least one university degreeOsteoarthritis
Laura63Current2 years 6 monthsAt least one university degreeOsteoarthritis
Olivia26Current3 years 5 monthsAt least one university degreeInflammatory arthritis
Deka55Current1 yearAt least one university degreeOsteoarthritis
Norma39Current3 yearsAt least one university degreeInflammatory arthritis
Gemma29Current1 yearAt least one university degreeInflammatory arthritis
Susan65Current4 monthsAt least one university degreeInflammatory arthritis
David64Current3 yearsAt least one university degreeInflammatory arthritis
Sarah42Current4 yearsAt least one university degreeInflammatory arthritis
Sensei65Current3 years 6 monthsUnavailableInflammatory arthritis
Phoebe Lewis68Past10 yearsBelow university degreeInflammatory arthritis
Lori60Past7 yearsBelow university degreeInflammatory arthritis