Characteristics | Participants (n=916)* |
Age, median (Q1, Q3) | 37 (27, 48) |
Diagnosis, n (%) | |
Haemophilia A | 532 (58.1) |
Haemophilia B | 82 (8.9) |
Non-haemophilia | 302 (33.0) |
Severity of haemophilia† , n (%) | |
Normal | 3 (0.6) |
Mild | 54 (10.6) |
Moderate | 88 (17.3) |
Severe | 352 (69.3) |
Do not know | 11 (2.2) |
Ever been diagnosed with inhibitor† , n (%) | |
Yes | 70 (14.1) |
No | 384 (77.2) |
Do not know | 43 (8.7) |
Currently have an clinically significant inhibitor, n (%) | 24 (2.6) |
Sex, n (%) | |
Male | 685 (74.8) |
Female | 231 (25.2) |
Age when started school, median (Q1, Q3) | 6 (5, 6) |
Year of school or education, median (Q1, Q3) | 15 (12, 18) |
Married or long-term relationship, n (%) | 581 (69.0) |
Having children, n (%) | 462 (55.3) |
Region, n (%) | |
Africa | 8 (0.9) |
Western Pacific | 216 (23.6) |
South America | 343 (37.4) |
North America | 138 (15.1) |
Europe | 211 (23.0) |
*After exclusion of three possible duplicates.
†Haemophilia population.
Q1; the first quartile, Q3; the third quartile.