Table 1

Participants’ characteristics

CharacteristicsParticipants (n=916)*
Age, median (Q1, Q3)37 (27, 48)
Diagnosis, n (%)
 Haemophilia A532 (58.1)
 Haemophilia B82 (8.9)
 Non-haemophilia302 (33.0)
Severity of haemophilia† , n (%)
 Normal3 (0.6)
 Mild54 (10.6)
 Moderate88 (17.3)
 Severe352 (69.3)
 Do not know11 (2.2)
Ever been diagnosed with inhibitor† , n (%)
 Yes70 (14.1)
 No384 (77.2)
 Do not know43 (8.7)
Currently have an clinically significant inhibitor, n (%)24 (2.6)
Sex, n (%)
 Male685 (74.8)
 Female231 (25.2)
Age when started school, median (Q1, Q3)6 (5, 6)
Year of school or education, median (Q1, Q3)15 (12, 18)
Married or long-term relationship, n (%)581 (69.0)
Having children, n (%)462 (55.3)
Region, n (%)
 Africa8 (0.9)
 Western Pacific216 (23.6)
 South America343 (37.4)
 North America138 (15.1)
 Europe211 (23.0)
  • *After exclusion of three possible duplicates.

  • †Haemophilia population.

  • Q1; the first quartile, Q3; the third quartile.