Table 2

Characteristics of participants of the online forum and interview study

Sample characteristicsInterviewsOnline forum
N (Median)
(Range)
N (Median)
(Range)
Total participants4284
Age
  Survivor72 (61–93)50 (32–72)
  Caregiver*
Gender
  Male – survivor720
  Female – survivor2126
  Not known – survivor3
  Caregiver of male survivor*420
  Caregiver of female survivor*1012
  Unknown gender and unknown identity3
Identity person posting
  Stroke survivor2849
  Caregiver1433
  Not known2
Years since stroke
  0–12 months437
  1–51425
  6–1064
  11–1522
  15+21
  Unknown15
Type of stroke
  TIA14
  Ischaemic stroke13
  Haemorrhagic stroke1
Caregiver identity
  Daughter/son220
  Spouse129
  Other (in-law/sister)3
  Unknown1
Number of posts about secondary prevention
37 (1 participant)
15 (1 participant)
1 (44 participants)
2 (19 participants)
3 (6 participants)
  • *Refers to ‘caregiver’ in interviews and ‘Patient talked about by caregiver’ in the forum discussions.

  • TIA, Transient ischaemic attack.