Table 1

Systemic sclerosis sample description (n=950)

M±SD or n (%)
Demographic characteristics
Age in years (n=947)55.48±12.05
Language
 English882 (92.8)
 French68 (7.2)
Sex
 Women827 (87.1)
 Men123 (12.9)
Race/ethnicity
 White807 (84.9)
 Black54 (5.7)
 Other88 (9.3)
 Missing1 (0.1)
Marital status
 Married/partnered692 (72.8)
 Never married111 (11.7)
 Divorced/separated110 (11.6)
 Widowed37 (3.9)
Employment status
 Full-time employment282 (29.7)
 Part-time employment103 (10.8)
 Unemployed123 (12.9)
 Homemaker, student, other439 (46.5)
 Missing1 (0.1)
Disease characteristics
Years since first non-Raynaud’s symptoms (n= 876)11.75±8.90
Modified Rodnan Skin Score
(n=759)
7.98±8.71
Disease subtype
 Diffuse383 (40.3)
 Limited/sine558 (58.8)
 Not available9 (0.9)
Telangiectasia (any; n=950)
 Yes677 (71.3)
 No257 (27.1)
 Not available16 (1.7)
Telangiectasia (face; n=677)
 Yes452 (66.8)
 No75 (11.1)
 Not available150 (22.1)
Pigmentation changes (any; n=950)
 Yes285 (30.0)
 No600 (63.2)
 Not available65 (6.8)
Pigmentation changes (face; n=285)
 Yes147 (51.6)
 No94 (33.0)
 Not available44 (15.4)
Hand contractures (n=950)
 No/mild (0%–25%)674 (70.9)
 Moderate (25%–50%)172 (18.1)
 Severe (>50%)50 (5.3)
 Not available54 (5.7)