Participant demographics
| First survey | Second survey | |
| Participant characteristic | ||
| Patient or carer | 341 | 373 |
| Healthcare professional | 86 | 51 |
| Preferred not to say | 3 | 1 |
| Other | 3 | 19 |
| Left blank | 5 | 3 |
| Age | ||
| 16–24 years | 4 | 5 |
| 25–34 years | 25 | 43 |
| 35–44 years | 38 | 45 |
| 45–54 years | 62 | 86 |
| 55–64 years | 87 | 117 |
| 65–74 years | 75 | 115 |
| 75 and over | 20 | 30 |
| Prefer not to say | 1 | 3 |
| Left blank | 6 | 3 |
| Ethnicity | ||
| Arab | 1 | 1 |
| Asian or Asian British: Indian | 7 | 5 |
| Asian or Asian British: Chinese | 3 | 0 |
| Asian or Asian British: Other | 1 | 1 |
| Asian or Asian British: Pakistani | 2 | 3 |
| Black or Black British: Caribbean | 4 | 1 |
| Black or Black British: African | 2 | 0 |
| Black or Black British: Other | 1 | 0 |
| Prefer not to say | 7 | 8 |
| Scottish | 0 | 1 |
| White | 411 | 412 |
| White English | 0 | 1 |
| White and Asian | 1 | 3 |
| White and Black African | 1 | 2 |
| White and Black Caribbean | 1 | 2 |
| White and North African | 0 | 1 |
| White British | 0 | 1 |
| Other | 2 | 0 |
| Missing | 2 | 5 |
| Gender | ||
| Female | 225 | 237 |
| Male | 218 | 202 |
| In another way | 1 | 0 |
| Prefer not to say | 0 | 5 |
| Left blank | 4 | 3 |
| Gender same as at birth | ||
| No | 3 | 1 |
| Yes | 427 | 434 |
| Prefer not to say | 0 | 5 |
| Left blank | 7 | 7 |
| Did not understand the question | 1 | 0 |
| Sexual orientation | ||
| Lesbian or gay | 13 | Unknown |
| Bisexual | 6 | Unknown |
| Heterosexual | 392 | Unknown |
| Other | 3 | Unknown |
| Prefer not to say | 15 | Unknown |
| Left blank | 19 | Unknown |