Description of profiles
| Profile 1: Community residents | Profile 2: Community residents with EoL care transitions | Profile 3: Care residents with EoL care transitions | Profile 4: Permanent care residents | |||||
| Year of death | 1998 | 2013 | 1998 | 2013 | 1998 | 2013 | 1998 | 2013 |
| % of population (n) | 8.5 (2889) | 8.4 (3207) | 64.3 (21 951) | 59.3 (22 568) | 10.5 (3574) | 14.7 (5610) | 14.5 (4958) | 16.2 (6176) |
| Population | ||||||||
| Age, mean* | 79.4 | 81.1** | 81.4 | 83.2** | 85.2 | 86.8** | 86.3 | 87.8** |
| Age (%)† | ||||||||
| 70–79 | 55.2 | 44.9** | 41.7 | 32.0** | 19.5 | 15.0** | 16.8 | 12.9** |
| 80–89 | 37.0 | 41.2** | 45.9 | 47.7** | 54.6 | 48.2** | 49.9 | 44.6** |
| 90+ | 7.8 | 13.9** | 12.4 | 20.3** | 25.9 | 36.8** | 33.3 | 42.5** |
| Gender† | ||||||||
| Men | 51.4 | 57.6** | 45.2 | 48.3** | 31.1 | 34.5** | 23.9 | 27.0** |
| Women | 48.6 | 42.4** | 54.8 | 51.7** | 68.9 | 65.5** | 76.1 | 73.0** |
| Number of diagnoses, mean* | 1.5 | 1.8** | 2.4 | 2.7** | 2.7 | 3.0** | 2.3 | 2.3 |
| Diagnoses (%)† | ||||||||
| Dementia | 5.7 | 10.8** | 12.0 | 20.4** | 40.8 | 59.3** | 56.5 | 70.4** |
| Cancer | 7.0 | 8.9** | 31.0 | 36.4** | 12.9 | 13.3 | 6.5 | 8.1* |
| Diabetes | 8.9 | 12.1** | 15.0 | 17.9** | 16.0 | 17.8* | 10.0 | 10.1 |
| Mental disorders | 5.9 | 8.2** | 6.3 | 5.8* | 10.4 | 8.4* | 8.5 | 5.6** |
| Neurological | 3.9 | 5.6* | 9.8 | 11.7** | 15.8 | 14.8 | 11.9 | 11.3** |
| Respiratory | 14.9 | 19.9** | 43.8 | 48.0** | 52.9 | 56.7** | 51.3 | 39.9** |
| Hip fracture | 1.2 | 1.5 | 6.7 | 6.1* | 15.8 | 10.5** | 7.4 | 4.7** |
| Stroke | 12.0 | 10.3* | 22.1 | 19.2** | 28.6 | 25.9* | 27.0 | 21.5** |
| Ischaemic heart disease | 74.2 | 66.5** | 57.7 | 57.7 | 52.5 | 51.3 | 37.4 | 34.0** |
| Other circulatory disease | 25.8 | 35.8** | 30.6 | 46.4** | 25.7 | 41.2** | 18.1 | 25.0** |
| Description of profiles | ||||||||
| Number of transitions,‡ mean (median) | ||||||||
| In last 2 years | 1.8 (0) | 1.6 (0)** | 9.7 (7) | 9.9 (7) | 8.3 (6) | 9.1 (6)** | 2.5 (0) | 2.7 (0) |
| In last 6 months | 0 | 0 | 4.5 (3) | 4.7 (4)** | 2.8 (2) | 3.4 (3)** | 0 | 0 |
| Days in care,‡, mean (median) | 14.8 (0) | 10.4 (0)** | 78.7 (53) | 77.5 (52)** | 610.9 (665) | 645.0 (728)** | 672.5 (730) | 688.2 (730)** |
| Primary care hospital | 5.7 (0) | 5.9 (0) | 42.1 (20) | 43.7 (24)** | 128.0 (41) | 84.1 (24)** | 398.7 (461) | 148.9 (0)** |
| Specialised care hospital | 3.5 (0) | 2.4 (0)** | 23.6 (0) | 16.2 (9)** | 23.2 (5) | 14.5 (3)** | 14.4 (0) | 11.0 (0)** |
| Nursing home | 5.5 (0) | 0.6 (0)** | 13.0 (0) | 6.8 (0)** | 450.1 (518) | 122.7 (0)** | 259.1 (0) | 259.5 (0) |
| Service housing | na | 1.4 (0) | na | 10.7 (0) | na | 424.8 (521) | na | 266.9 (0) |
| Home | 715.2 (730) | 719.6 (730)** | 651.4 (677) | 652.5 (680)** | 119.1 (65) | 84.6 (2)** | 57.5 (0) | 41.8 (0)** |
Comparison between 1998 and 2013.
EoL, end of life, refers to the last 6 months of life.
Number of diagnoses: mean number of major diagnostic groups in Causes of Death register, Care Register for Health Care and Care Register for Social Welfare.
Diagnoses: prevalence by profiles in 1998 and in 2013 in Causes of Death register, Care Register for Health Care and Care Register for Social Welfare.
*0.001≤p<0.005, **p<0.001.
*p Value refers to independent samples t-test between 1998 and 2013.
†p Value refers to χ2 test by crosstabs between 1998 and 2013.
‡p Value refers to Mann-Whitney U test between 1998 and 2013.
na, information not available.