Table 2

Data variables collected during the study

Part 1: Records auditPart 2: Survey
CategoryVariableCategoryVariable
OrganisationDemographics
NameAge
TypeSex
StateCountry of birth
SizeAboriginal status
DemographicsEthnicity
AgeReligion
SexLanguage spoken
PostcodeRelationship status
Country of birthEducation
Aboriginal statusLevel of support
EthnicityHealth status/EQ-5D
ReligionMobility
Language spokenUsual activities
Date of admission/visitSelf-care
Came fromPain-discomfort
Medical conditionAnxiety/depression
ECOG statusKnowledge
DocumentationKnowledge of ACP
Previous discussions
Barriers and enablers
Personal preferences
Ability to find in 15 minReadiness for ACP
Date of the documentFuture worries/wishes
Legal appointment of substitute decision-maker
Time taken to findEvidence
Location of the documentEvidence of ACP documentation
Name, type and other details
Person’s preferences
Life prolonging treatment type
Treatment to extend life
Comfort/palliative care
Other preferences
Place of care and/or death
Medical orders
Limitations of medical treatment
Palliative/comfort care
Other orders
Consistency with person’s wishes
  • ACP, advance care planning; ECOG, Eastern Cooperative Oncology Group; EQ-5D, EuroQol-5 Dimension.