Table 2

Predefined dimensions from the preinvestigation, their items, responses (valid responses, don’t know, not relevant, missing) and proportion of missing values

Dimensions and their itemsValid responsesDo not knowNot relevantMissingProportion of missing values
nnnn%
Communication
A1Was your condition taken seriously the first time you or anyone else contacted a doctor or the emergency dispatch centre in connection with your heart disease?21691491787.6
A2Do you think that the hospital staff involved you in decisions regarding your treatment?22016802279.1
A3Do you think that the hospital staff took you seriously?22134602379.5
A4Do you think that the hospital staff did what they could to answer your questions?21895902489.9
A5*Do you think that the hospital staff treated you as a human being and was not only interested in your illness and medication?22374102188.7
A6Do you think that the hospital staff listened to you?22214802279.1
A7Do you think that your GP involved you in decisions regarding your treatment?1763764681899.3
A8Do you think that your GP took you seriously?1821304681778.7
A9Do you think that your GP did what he/she could to answer your questions?17864046820210.0
A10*Do you think that your GP treated you as a human being and was not only interested in your illness and medication?1810394681798.8
A11Do you think that your GP listened to you?1838204681708.4
Information
B1†Do you feel informed about which test/examinations you had to undergo and about the course of treatment?210197029811.9
B2Do you feel informed about how the disease may affect your future?1954220032212.9
B3Do you feel informed about what you can do to get better for instance with physical activity or diet?2061117031812.7
B4†Do you feel informed about who to contact in case your disease is worsening?2035131033013.2
B5Do you feel informed about what your body can physically endure?1990182032413.0
B6Do you feel informed about possible causes of your disease?1801356033913.6
B7†Have you received conflicting information from different staff about your disease?2002225026910.8
Rehabilitation/support
C1Have you been offered smoking cessation guidance in connection with your disease?61128167018722.6
C2Have you been offered physical training in connection with your disease?22203602409.6
C3Have you been offered dietary guidance in connection with your disease?211678030212.1
C4Have you been offered education about your illness and its treatment in connection with your disease?2056125031512.6
C5*Have you been offered guidance on sex life and relationships in connection with your disease?207898032012.8
C6*Have you been offered psychological/emotional support in connection with your disease?209596030512.2
Psychosocial aspect
D1‡Do you feel informed about the emotional reactions you may experience as a result of your disease?1938234032413.0
D2‡Do you feel informed about the emotional reactions your relatives may experience as a result of your disease?1896270033013.2
D3‡Do you feel informed about how the disease may affect your relationship with family, friends and others?1877289033013.2
D4‡Do you feel informed about what the disease can mean for your sex life and relationships?1821295038015.2
D5§Did healthcare staff at any time ask if you have experienced emotional problems in connection with your disease?211720501747.0
D6§Did you get an assessment of whether or not you had developed anxiety and/or depression by means of a questionnaire in connection with your disease?207921102068.3
Organisation
E1‡Was contact information provided to you at the hospital wards you have been in contact with?224902479.9
E2¶Did you experience that the hospital staff was informed about the treatment of your disease?215417201706.8
E3Do you believe that a doctor or a nurse at the hospital have had an overall view of the course of treatment of your disease?219513501666.7
E4Do you think that you and/or your relatives have been partly responsible for the course of treatment which you believe the hospital should have been?206720302269.1
E5¶Did you experience that your GP was informed about the course of treatment of your disease?17701044681547.6
E6Have you had to press for any guidance or support in connection with your disease?1891337026810.7
E7‡Did you know what was going to happen when you were discharged from the hospital?12956295518411.9
E8‡Were you told who to contact if you had questions about your illness or your course of treatment when you were discharged from the hospital?12649395518411.9
E9Did the hospital staff make sure that you had an appointment for a consultation with your GP when you were discharged from the hospital?123013795517411.3
E10Did the hospital staff take your other diseases (comorbidities) into consideration in the course of treatment of your heart disease?99626251272636.6
E11Did your GP take your other diseases (comorbidities) into consideration in the course of treatment of your heart disease?84919387957535.6
Medication
F1§Have you been offered an individual consultation about medication in connection with your disease?2101123027210.9
F2‡Do you feel informed about why you get medication for your disease?2108477826310.9
F3‡Do you feel informed about possible side effects of medications for your disease?19721257832113.3
F4‡Do you feel informed about how long you should take medication for your disease?17333997828611.8
F5¶Were you taken seriously when you contacted a doctor due to side effects?81514142424322.7
Involvement of relatives
G1Has the staff made you aware of the possibility of having your relative(s) with you to consultations?221610101797.2
G2Has the staff involved your relative(s), the way you would like?18861822381908.4
  • The questionnaire was developed in Danish, and the translation to English has not been linguistically validated. Unless specified in the questionnaire items, the questions concern all the sectors, the patient has been in contact with (the hospital, GP and the municipality).

  • *Could theoretically also enter the dimension psychosocial aspects.

  • †Could theoretically also enter the dimension organisation.

  • ‡Could theoretically also enter the dimension information.

  • §Could theoretically also enter the dimension rehabilitation/support.

  • ¶Could theoretically also enter the dimension communication.

  • GP, general practitioner.