Table 1

Study timeline

	Activity
4 months	Employ additional staff, identify practices involved.
4 months	Study lead-in and set-up—staff commence, ethics applications, contact practices. Commence registry liaison.
4 months	Steps 1–4 and 8 of study protocol Baseline data extraction and qualitative information collection Commence training for GPs, PNs and practice staff. List at-risk patients for recall.
12 months	Steps 5–8 of study protocol Patients seen for management Monitor management/compliance and registry data. Relatives cascade tested/annotated attempts to contact family members. Time estimation and cost data sourced Qualitative information collected from practices
6 months	Study write-up Information dissemination