Table 1

Study timeline

4 monthsEmploy additional staff, identify practices involved.
4 monthsStudy lead-in and set-up—staff commence, ethics applications, contact practices. Commence registry liaison.
4 months Steps 1–4 and 8 of study protocol
Baseline data extraction and qualitative information collection
Commence training for GPs, PNs and practice staff.
List at-risk patients for recall.
12 months Steps 5–8 of study protocol
Patients seen for management
Monitor management/compliance and registry data.
Relatives cascade tested/annotated attempts to contact family members.
Time estimation and cost data sourced
Qualitative information collected from practices
6 monthsStudy write-up
Information dissemination
  • GP, general practitioner; PN, practice nurse.