Table 2

Patient interview schedule

TopicsExemplar questions
1Experiences of information about risk in the oncology consultationCan you tell me a bit about your experience of being diagnosed with prostate cancer? How did you come to understand what that meant?
2Personal definitions of risk in the context of prostate cancer and active surveillanceWhat do you consider to be a risk in prostate cancer? Why?
3Priorities regarding risks in prostate cancer and active surveillanceWhat are you most concerned about with your diagnosis of prostate cancer?
4Whether priorities regarding risk in prostate cancer and active surveillance have changed.Have your concerns changed since you were initially diagnosed?
5The extent they consider these priorities as taken into account by health professionalsHow have your doctor and other health professionals responded to your concerns?
6Views and experiences on risk assessment and their risk classificationHave you undergone a formal risk assessment for your prostate cancer? If so, what was that like? What is your risk classification?
If not, has your doctor provided you details regarding your risk in prostate cancer? Have they talked about prognosis?
Can you tell me about your experience of prostate cancer testings? How have you found receiving the results of these tests?
7Perceptions and expectations of active surveillanceWhat do you know about active surveillance?
8How active surveillance has been discussed with health professionalsWhat has your doctor told you about active surveillance? How useful has this information been?
9Treatment decisions, how they are made and by whom, how care is negotiated with healthcare professionals.What about discussing other treatments with your doctor?
10Their experiences of discussing risk in clinical consultations for prostate cancerCan you tell me about your experience of talking to your doctors about your diagnosis and what it means?
11Patients’ aspirations for future health and well-beingWhat are your hopes for your treatment?