Table 3

Matched paired analysis: CUP and non-CUP patients

ItemCUP
n (%)
Known primary n (%)Cramer’s V
Q8. Beforehand, were you given written information about your test(s)?
 Yes, and it was easy to understand808 (83)917 (90)0.102
 Yes, but it was difficult to understand37 (4)32 (3)
 No, but I would have liked written information about the test(s)127 (13)73 (7)
 I did not need written information/Don’t know/can’t remember392334
Q9. Were the results of the test(s) explained to you in a way you could understand?
 Yes, completely961 (72)1042 (78)0.076
 Yes, to some extent322 (24)259 (20)
 No, but I would have liked an explanation48 (4)28 (2)
 I did not need an explanation/Don’t know/can’t remember/Missing 33 27
Q10. Who first told you that you had cancer?
 A hospital doctor1191 (81)1199 (82)0.104
 A hospital nurse44 (3)91 (6)
 A GP155 (11)104 (7)
 Another health professional40 (3)51 (4)
 A friend or relative5 (0.3)3 (0.2)
 Nobody—I worked it out for myself30 (2)17 (1)
 Missing3131
Q13. Did you understand the explanation of what was wrong with you?
 Yes, I completely understood it1006 (68)1162 (78)0.123
 Yes, I understood some of it438 (30)313 (21)
 No, I did not understand it32 (2)9 (1)
 Can’t remember/Missing2012
Q14. When you were told you had cancer, were you given written information about the type of cancer you had?
 Yes, and it was easy to understand670 (54)834 (67)0.132
 Yes, but it was difficult to understand104 (8)91 (7)
 No, I was not given written information about the type of cancer I had466 (38)326 (26)
 I did not need written information/Don’t know/can’t remember/Missing 256 245
Q16. Do you think your views were taken into account when the team of doctors and nurses caring for you were discussing which treatment you should have?
 Yes, definitely848 (61)951 (68)0.078
 Yes, to some extent343 (25)284 (20)
 No, my views were not taken into account112 (8)82 (6)
 I didn’t know my treatment was being discussed by a team of doctors/nurses91 (7)80 (6)
 Not sure/can’t remember/Missing 102 99
Q32. During the last 12 months, have you had an operation (such as removal of a tumour or lump) at one of the hospitals in the covering letter?
 Yes824 (55)1004 (67)0.124
 No635 (42)469 (31)
 Missing3723
Q34. Beforehand, were you given written information about your operation?
 Yes, and it was easy to understand472 (64)649 (71)0.077
 Yes, but it was difficult to understand36 (5)30 (3)
 No, I was not given written information about my operation229 (31)234 (26)
 Don’t know/can’t remember/Missing8791
Q66. Have you had treatment from any of the following (cancer specialists) for your cancer (patients were asked to tick as many as apply from the following list: physiotherapist; occupational therapist; dietician; speech and language therapist; lymphoedema specialist)
 Yes132 (9)37 (3)0.138
  • CUP, cancer of unknown primary.