Table 1

Combination of data collection methods for study objectives

Objectives
To explore individuals’ experience of XP and influences on photoprotection behaviours.To objectively measure UVR exposure and by adjusting for photoprotection behaviours, calculate the UVR dose to the face.To identify the psychological and social, disease-specific and sociodemographic factors associated with dose of UVR to the face.To identify psychological and social predictors of within-individual variation in photoprotection behaviours over time.
Qualitative interviewsX
Cross-sectional questionnaireX
Daily online (n-of-1) questionnaireX
Daily UVR protection diaryXX
Sunscreen weightX
DosimeterX
Cognitive testsX
Sociodemographic and clinical dataX

  • UVR, ultraviolet radiation; XP, xeroderma pigmentosum.