Table 2

Sample characteristics including normality types, adaptation strategies and outside support

Patient IDAgeYear of diagnosisMarital statusEmployment statusDisease severity (mild, moderate or severe)*Current medication regimen†Dominant type of normality at interviewPrevious period of normality described
(non-normal life only)
Adaptation strategies used Outside support described
131–402004MarriedSelf-employedModerate/severe5-ASA, immunomodulatorsNon-normalNYN
231–402013MarriedEmployedMild5-ASA, immunomodulatorsNon-normalNYN
331–402003MarriedEmployedModerate5-ASA, immunomodulatorsNon-normalYYY
421–302014CohabitingEmployedMild5-ASA, immunomodulatorsNon-normalNYY
551–602009MarriedNot employedModerate5-ASA, immunomodulatorsNon-normalNYY
631–402013MarriedEmployedModerate/Severe5-ASA, immunomodulatorsNon-normalNYY
741–502012SingleSelf-employedMild5-ASA,Non-normalNYN
821–302009SingleEmployedModerate5-ASA, immunomodulatorsNon-normalNYY
921–302011SingleEmployedMild5-ASA, biologicsNormalN/AYY
1051–602014DivorcedSelf-employedModerate5-ASANon-normalNYN
1131–402002SingleEmployedMild5-ASANon-normalYYN
1241–502013DivorcedSelf-employedMild5-ASANormalN/AYN
1321–302013SingleEmployedMild5-ASANormalN/AYY
1421–302014SingleEmployedModerateImmonumodulators, biologicsNon-normalNYN
1531–401995SingleEmployedModerate5-ASA, immunomodulatorsNormalN/AYY
1621–302014SingleEmployedModerate5-ASA, immunomodulatorsNon-normalNYY
1731–402006SingleEmployedMild5-ASA, immunomodulatorsNormalN/AYN
1851–602014SeparatedNot knownMild5-ASANormalN/AYN
1941–502003MarriedEmployedModerate5-ASA,NormalN/AYY
20<202014SingleUnemployedMild/moderate5-ASANon-normalNY (medication only)Y
2141–502012MarriedSelf-employedModerate/severe5-ASA, immunomodulatorsNon-normalNYY
2241–501993MarriedEmployedMild5-ASANormalN/AYN
2321–302014CohabitingEmployedMild5-ASANormalN/AY (medication only)Y
2441–502003MarriedEmployedMildNoneNormalN/AYY
2541–402013MarriedEmployedMild5-ASA, immunomodulatorsNon-normalNYN
2651–602004MarriedEmployedModerate5-ASA, immunomodulatorsNormalN/AYY
2731–402011MarriedEmployedMild/moderate5-ASA, immunomodulators, biologicsNormalN/AYY
2831–402013MarriedEmployedModerate5-ASA, immunomodulatorsNon-normalNYN
  • *Disease severity was categorised based on patients’ descriptions of their symptoms and through analysis of this and descriptions of the impacts of ulcerative colitis that patients provided for example, the amount of time patients took off work, and the number of flare ups patients described.

  • †Categorical data on type of medication at the time of interview.

  • ‡Y =yes, N=no.

  • ASA, 5-aminosalicylic acid; N/A, not applicable.