Study objectives outlined against data collection and patient outcomes examined
Objectives | Data collection | Outcomes |
Provide a qualitative account of treatment and service provision and patient-reported HRQoL (group 1) | Observe consultations for communication styles and treatment and service delivery decisions Semistructured interviews with patients and healthcare professionals Patient HRQoL questionnaires | Patient and professional-reported outcomes Observational outcomes Patient and healthcare professional-reported outcomes Patient-reported HRQoL |
Retrospectively review of medical records of patients who have undergone or have been assessed as candidates for resective surgery (group 2) | Review of demographic information, diagnostic tests and presurgery assessments, surgical options and medication information | Surgical outcomes related to demographic information |
Comprehensive epidemiological study of service use by patients with epilepsy across New South Wales for a 5-year period (group 3) | Retrospective epidemiological data assessment | Service and treatment utilisation, hospital separations, mortality, medication use, clinical outcomes |
HRQoL, health-related quality of life.