Table 3

Data and associated methods of collection for participants with incident T1D and for sibling participants at the time of recruitment

DataIncident T1DSibling
Via interview or at visitVia or validated against medical recordsVia interview or at visit
Contact details and unique NHS identifierXX
General practitioner (GP) details (GP is informed of the person’s participation)XX
Diabetes care physician details (physician is informed of the person’s participation if not the principal investigator at the research site)XX
Demographic information including self-reported ethnic originXX
Date of diagnosis, clinical presentation and duration of symptoms (presentation with diabetic ketoacidosis, polyuria/polydipsia, weight loss, fatigue, abdominal pain,* fasting or random plasma glucose)XX
Current diabetes treatment regimen, including date insulin first administeredXX
Non-diabetic medicationXXX
Medical history including history of autoimmune diseases (Addison’s disease, coeliac disease, hyperthyroidism, hypothyroidism and vitiligo) and of gestational diabetesXXX
Family medical history including parental and grandparental history of diabetes, hypertension, myocardial infarction and stroke, along with sibling demographics and diabetes historyXX
Clinical measures, including blood pressure, weight and height using standard protocolsXX
Blood biochemistry including glycated haemoglobin (HbA1c) (mmol/mol), fasting or random plasma glucose (mmol/L), oral glucose tolerance test results (mmol/L) if performed locally and C-peptide levels (nmol/L) if performed locallyX
Details of diabetes structured education offered/scheduled/completed*XX
  • *Collected for participants recruited from February 2015 onwards.

  • T1D, type 1 diabetes; NHS, National Health Service.