Table 1

Health and intellectual disability service and mortality profiles as recorded in the data set person level (at the last record), numbers presented in n (%) unless otherwise specified

APDCEDDCMortality (RBDM)DS-MDS
Number of people (% of the defined cohort with intellectual disability)28 233 (55)24 242 (47)2844 (5.5)42 243 (82)
Median (IQR) age at the last event, years24 (10–46)21 (10–41)56 (35–68)23 (14–42)
 0–43408 (12.1)2115 (8.7)160 (5.6)1022 (2.4)
 5–145878 (20.8)6197 (25.6)149 (5.2)10 258 (24.3)
 15–244955 (17.6)5202 (21.5)194 (6.8)10 987 (26.0)
 25–343279 (11.6)3048 (12.6)181 (6.4)5842 (13.8)
 35–443210 (11.4)2618 (10.8)246 (8.7)4832 (11.4)
 45–542993 (10.6)2361 (9.7)424 (14.9)4511 (10.7)
 55–642466 (8.7)1768 (7.3)556 (19.6)3237 (7.7)
 65–741306 (4.6)688 (2.8)494 (17.4)1203 (2.9)
 75–84580 (2.1)203 (0.8)323 (11.4)284 (0.7)
 85 and over158 (0.6)42 (0.2)117 (4.1)67 (0.2)
Sex
 Female11 753 (41.6)9529 (39.3)1214 (42.7)16 885 (40.0)
 Male16 480 (58.4)14 712 (60.7)1629 (57.3)25 334 (60.0)
 Other01 (0.0)1 (0.0)24 (0.1)
Ever received disability services20 199 (71.5)22 304 (92.0)1448 (50.9)42 243 (100)
Remoteness area of residence
 Major cities19 042 (67.5)16 215 (66.9)1993 (70.1)28 137 (66.6)
 Inner regional7017 (24.9)6524 (26.9)639 (22.5)11 254 (26.6)
 Outer regional1791 (6.3)1295 (5.3)183 (6.4)2545 (6.0)
 Remote137 (0.5)85 (0.4)9 (0.3)197 (0.5)
 Very remote7 (0.0)8 (0.0)1 (0.0)9 (0.0)
 Unknown239 (0.9)115 (0.5)19 (0.7)0 (0.0)
Index of relative socioeconomic disadvantage in NSW of residence
 First quintile (most disadvantaged)5633 (20.0)4864 (20.1)533 (18.7)5803 (13.7)
 Second quintile5563 (19.7)4853 (20.0)588 (20.7)6125 (14.5)
 Third quintile7314 (25.9)6569 (27.1)736 (25.9)8258 (19.6)
 Fourth quintile5523 (19.6)4655 (19.2)560 (19.7)5902 (14.0)
 Fifth quintile (least disadvantaged)3965 (14.0)3190 (13.2)408 (14.4)4439 (10.5)
 Unknown235 (0.8)111 (0.5)19 (0.7)11 716 (27.7)
  • The demographics presented in the table are from the last admission or use of ED within the analysis period in each data set.

  • APDC, Admitted Patient Data Collection; DS-MDS, Disability Services Minimum Data set; EDDC, Emergency Department Data Collection; RBDM, Registry of Births, Deaths and Marriages.