Table 5

Unadjusted ORs from binary logistic regressions investigating changes in information and support provision since the 2002 publication of the 1999 survey results and the 2009 RCOphth guidelines

Interest as a person?
OR (95% CI)
n=1088
Overall satisfaction?
OR (95% CI)
n=1084
Name of condition?
OR (95% CI)
n=1101
Written information?
OR (95% CI)
n=1090
Info on deterioration?
OR (95% CI)
n=1096
Help and support?
OR (95% CI)
n=1098
Macular Society contact?
OR (95% CI)
n=1097
Other contacts?
OR (95% CI)
n=1088
Likely progress?
OR (95% CI)
n=1100
Hallucination?
OR (95% CI)
n=1085
Sociodemographic
Gender
 Male1.001.001.001.001.001.001.001.001.001.00
 Female0.73 (0.54 to 0.97)*0.67 (0.49 to 0.91)*0.99 (0.64 to 1.54)0.79 (0.60 to 1.03)0.78 (0.61 to 1.01)0.68 (0.52 to 0.88)**1.05 (0.79 to 1.40)0.90 (0.65 to 1.25)0.63 (0.49 to 0.81)***0.98 (0.70 to 1.39)
Age at survey completion‡1.01 (1.00 to 1.03)1.03 (1.01 to 1.05)**0.96 (0.93 to 0.98)**0.98 (0.96 to 0.99)**0.97 (0.95 to 0.98)***1.01 (1.00 to 1.03)0.99 (0.97 to 1.01)1.01 (0.99 to 1.03)1.00 (0.99 to 1.02)1.03 (1.00 to 1.05)*
Eye-related variables
Number of eyes affected
 One eye1.001.001.001.001.001.001.001.001.001.00
 Both eyes0.58 (0.40 to 0.83)**0.57 (0.38 to 0.85)**0.87 (0.50 to 1.50)0.60 (0.44 to 0.81)**0.77 (0.57 to 1.04)0.58 (0.42 to 0.80)**0.55 (0.40 to 0.75)***0.93 (0.63 to 1.38)0.82 (0.61 to 1.11)0.89 (0.60 to 1.33)
Registration status
Contrast 1
 Not registered1.001.001.001.001.001.001.001.001.001.00
 Registered as SI or SSI0.52 (0.30 to 0.92)*0.65 (0.36 to 1.19)0.16 (0.07 to 0.38)***0.58 (0.33 to 1.02)0.29 (0.17 to 0.49)***0.31 (0.18 to 0.53)***0.89 (0.49 to 1.62)4.13 (2.16 to 7.91)***0.82 (0.48 to 1.38)2.92 (1.14 to 4.61)*
Contrast 2
 Registered as SI1.001.001.001.001.001.001.001.001.001.00
 Registered as SSI1.11 (0.69 to 1.76)0.63 (0.38 to 1.03)0.48 (0.26 to 0.87)*0.86 (0.53 to 1.40)0.93 (0.60 to 1.44)0.55 (0.35 to 0.85)**1.15 (0.70 to 1.90)1.11 (0.67 to 1.83)1.05 (0.68 to 1.63)0.82 (0.47 to 1.44)
Wet or dry AMD
Contrast 1
 Wet AMD only and mixed wet and dry AMD1.001.001.001.001.001.001.001.001.001.00
 Dry AMD only0.44 (0.26 to 0.75)**0.48 (0.27 to 0.84)*2.27 (0.94 to 5.51)0.59 (0.35 to 1.01)0.57 (0.35 to 0.92)*0.29 (0.17 to 0.47)***0.65 (0.37 to 1.15)0.67 (0.35 to 1.28)0.59 (0.36 to 0.97)*0.44 (0.22 to 0.89)*
Contrast 2
 Wet AMD only1.001.001.001.001.001.001.001.001.001.00
 Mixed wet and dry AMD0.67 (0.46 to 0.98)*0.60 (0.40 to 0.90)*1.17 (0.68 to 2.03)0.76 (0.54 to 1.09)0.82 (0.59 to 1.14)0.62 (0.44 to 0.87)**0.84 (0.58 to 1.22)0.85 (0.56 to 1.31)0.98 (0.71 to 1.37)0.88 (0.57 to 1.36)
Healthcare-related variables
HCP who first diagnosed
 Hospital eye specialist1.001.001.001.001.001.001.001.001.00n/a§
 Optometrist2.49 (1.88 to 3.30)***2.40 (1.77 to 3.26)***0.63 (0.42 to 0.96)*0.73 (0.57 to 0.95)*0.86 (0.68 to 1.10)1.28 (1.01 to 1.63)*0.94 (0.71 to 1.23)0.91 (0.67 to 1.25)1.11 (0.88 to 1.42)n/a§
Year of diagnosis (rank)‡1.02 (1.00 to 1.05)1.03 (1.01 to 1.06)*1.06 (1.03 to 1.10)**1.10 (1.07 to 1.14)***1.04 (1.02 to 1.07)***1.07 (1.04 to 1.09)***1.08 (1.05 to 1.11)***1.02 (0.98 to 1.05)0.99 (0.97 to 1.01)1.02 (0.99 to 1.06)
Survey time group
Contrast 1
 Before July 2002 publication of MDSQ 1999 results1.001.001.001.001.001.001.001.001.001.00
 After the 2002 publication (combined intervention effect)1.58 (0.80 to 3.14)2.24 (1.10 to 4.59)*3.47 (1.33 to 9.02)*7.31 (3.25 to 16.42)***2.58 (1.36 to 4.91)**2.84 (1.50 to 5.38)**4.74 (1.99 to 11.29)***1.37 (0.58 to 3.25)0.96 (0.51 to 1.81)1.41 (0.57 to 3.48)
Contrast 2
 Time between the 2002 paper publication and 2009 RCOphth guidelines publication1.001.001.001.001.001.001.001.001.001.00
 After RCOphth guidelines publication (February 2009)1.29 (0.96 to 1.72)1.63 (1.19 to 2.24)**1.19 (0.74 to 1.92)1.64 (1.25 to 2.16)***1.22 (0.94 to 1.59)1.63 (1.25 to 2.13)***1.49 (1.11 to 1.99)**1.19 (0.85 to 1.67)0.80 (0.62 to 1.04)1.16 (0.81 to 1.65)
  • *p<0.05; **p<0.01; ***p<0.001.

  • ‡In logistic regression, for continuous variables such as age at survey completion, an OR over 1 indicates increasing likelihood of the outcome as the predictor increases (ie, as age increases).

  • §This question was not specific to the diagnostic consultation, but asked if they were told “around the time of diagnosis”.

  • AMD, age-related macular degeneration; HCP, healthcare professional; MDSQ, Macular Disease Society Questionnaire; RCOphth, Royal College of Ophthalmologists; SI, sight impaired; SSI, severely sight impaired.