Table 3

Comparison of responses to questions on experiences within the diagnostic consultation across survey sample groups

 1999 survey sample2013 survey sampleχ2, p value: effect size and n2013 survey sample subgroupsχ2, p value: effect size and n
Before MDSQ 1999 paper results publication (July 2002)Between 2002 and 2009After RCOphth guidelines publication (February 2009)
Interested in you as a person?†537 (46.9%)805 (71.2%)χ2 (1)=138.58, p<0.001***:
126 (67.0%)302 (70.1%)351 (74.8%)χ2 (2)=4.86, p=0.09:
Given the name of your condition?‡906 (77.6%)1045 (91.0%)χ2 (1)=78.34, p<0.001***: φ=0.18,
165 (86.4%)401 (91.1%)435 (92.6%)χ2 (2)=6.30, p=0.04*:
Cramer's V=0.08,
Generally satisfied with diagnostic consultation?§698 (61.0%)856 (75.8%)χ2 (1)=57.59, p<0.001***:
129 (70.1%)320 (73.7%)382 (82.0%)χ2 (2)=13.85, p=0.01*:
Cramer's V=0.11,
Given written information?¶34 (17.7%)133 (30.4%)193 (41.9%)χ2 (2)=37.98, p<0.001***:
Cramer's V=0.19,
Given appropriate support, help or advice?††86 (45.7%)229 (52.2%)302 (64.1%)χ2 (2)=23.25, p<0.001***:
Cramer's V=0.15,
Information about the Macular Society?‡‡28 (15.1%)106 (24.0%)150 (31.9%)χ2 (2)=21.07, p<0.001***:
Cramer's V=0.14,
Information on action if sudden deterioration in your vision?§§80 (42.3%)227 (51.4%)262 (56.3%)χ2 (2)=10.67, p=0.005**:
Cramer's V=0.10,
Given information about likely progress of macular condition?¶¶84 (43.5%)203 (46.2%)190 (40.6%)χ2 (2)=2.94, p=0.23:
Other contacts for help and support?†††29 (15.4%)75 (17.1%)90 (19.5%)χ2 (2)=1.75, p=0.42:
Told about visual hallucinations?‡‡‡26 (13.5%)66 (15.4%)80 (17.2%)χ2 (2)=1.47, p=0.48:
  • Values are frequencies of ‘yes’ responses (valid percentage %) unless otherwise stated.

  • *p<0.05; **p<0.01; ***p<0.001.

  • †“Did you feel that this healthcare professional (who first diagnosed your macular condition), was interested in you as a person?” (Response ‘Yes’ or ‘No’ here and to all questions listed below).

  • ‡“Were you given the name of your condition at the time of diagnosis?” (This question was included in the MDSQ 1999 but the responses were not reported in the 2002 paper).

  • §“Overall, did you feel that the diagnostic consultation with this healthcare professional was satisfactory?”

  • ¶“Were you given any written information about your macular condition at the time of diagnosis?”

  • ††“Do you feel you were given appropriate support, help or advice at the time of diagnosis?”

  • ‡‡“Were you given information about the Macular Society (or the Macular Disease Society, as it was previously called) at the time of diagnosis?”

  • §§“Were you given any information around the time of diagnosis about what to do if you were to have a sudden deterioration in your vision?”

  • ¶¶“Around the time of diagnosis, were you given information about the likely progress of your macular condition?”

  • †††“Were you given any other contacts for help and support at the time of diagnosis?”

  • ‡‡‡“Were you told by a healthcare professional, around the time of diagnosis, of the possibility of experiencing visual hallucinations as a side effect of sight loss?”

  • MDSQ, Macular Disease Society Questionnaire; RCOphth, Royal College of Ophthalmologists.