Description of outcomes in the 39 included studies
| Global N=39 | Studies with published results n=26 | Studies in progress n=13 | ||||
|---|---|---|---|---|---|---|
| Outcomes* | Number | (%) | Number | (%) | Number | (%) |
| Single outcome | 5 | (13) | 4 | (15) | 1 | (8) |
| Several outcomes | 34 | (87) | 22 | (85) | 12 | (92) |
| Distinction between primary and secondary | 14 | (41) | 4 | (15) | 10 | (83) |
| At least one health providers perspectives outcome† | 28 | (72) | 20 | (77) | 8 | (61) |
| Clinical and biological data | 27 | (96) | 19 | (73) | 8 | (100) |
| Medical treatment adherence | 6 | (21) | 2 | (8) | 4 | (50) |
| At least one policymaker’s perspectives outcome† | 26 | (67) | 17 | (65) | 9 | (69) |
| Health service usage | 25 | (96) | 16 | (61) | 9 | (100) |
| Cost | 1 | (4) | 1 | (4) | 0 | (0) |
| At least one patients perspectives outcome† | 27 | (69) | 16 | (61) | 11 | (85) |
| Satisfaction | 19 | (70) | 13 | (50) | 6 | (54) |
| Psychological state | 10 | (37) | 7 | (27) | 3 | (27) |
| Condition and care knowledge | 8 | (30) | 3 | (11) | 5 | (45) |
| Quality of life | 11 | (41) | 4 | (15) | 7 | (64) |
| Autonomy/self-management | 9 | (33) | 3 | (11) | 6 | (54) |
| Familial and social issues | 5 | (18) | 0 | (0) | 5 | (45) |
| Collection method for patients perspectives outcome† | ||||||
| Qualitative (interview) | 3 | (8) | 3 | (11) | 0 | |
| Quantitative (questionnaires) | 23 | (59) | 14 | (54) | 9 | (69) |
| Validated tools | 11 | (28) | 5 | (19) | 6 | (46) |
| NR | 2 | (5) | 2 | (15) | ||
| Statistical assessment | 12 | (46) | 12 | (46) | − | − |
*In this table, there is no distinction between primary and secondary criteria.
†The fact that the sum of different outcome types is higher than total number in each category is explained by the possibility for studies to report more than one outcome by category.
NR, not reported.