Table 4

Topics identified by participants where more information was desired to assist young people with the management of their persistent pain

Topic areaSpecific information components
1. Self-management

  • Assist with managing information, actions and medication from all health professionals involved in care

  • Pain management strategies

  • Practical tips and strategies

  • Tracking pain levels

2. Online screening tools

  • Screening/diagnostic tools

3. Prevention

  • Prevention of injury

4. Education

  • Education for health professionals

  • Enhance patient health literacy

  • Section for parents/carers

  • Education for employers and employees

  • Education for teachers and employers

5. Pain physiology

  • Insight into what causes pain and affects on the body

6. Medication information

  • Drug efficacy

7. Support

  • Online chat with peers

  • Online chat/access to health professionals specialising in pain

  • Motivational/inspirational spaces

8. Available healthcare assistance

  • Directory of health professionals specialising in pain management

  • Online repository for best practice