Table 1

Patient assessment schedule

OutcomeMeasurement toolValidatedBaseline8 weeksEvery 3 monthsAfter death
DemographicsDemographic questionnaire
Patient understanding of survival timePrognosis survey and the iTool
Patient/family/healthcare provider communication about EOL careEOL communication with family and healthcare providers questionnaire
Quality of lifeEQ-5D5L
Preference for quantity or quality of lifeDiscrete choice experiment
Patient satisfaction with careSatisfaction with care survey
Costs of ACPCosts of care survey
Satisfaction with interventionSatisfaction with ACP intervention (intervention arm only)
The documentation of patient preferences for EOL care and concordance with care received at the EOLMedical record review form
Prevalence, timing and location of EOL care documentsMedical record review form