Table 1

Patient assessment schedule

OutcomeMeasurement toolValidatedBaseline8 weeksEvery 3 monthsAfter death
DemographicsDemographic questionnaire✓
Patient understanding of survival timePrognosis survey and the iTool✓✓✓
Patient/family/healthcare provider communication about EOL careEOL communication with family and healthcare providers questionnaire✓✓
Quality of lifeEQ-5D5L✓✓✓✓
Preference for quantity or quality of lifeDiscrete choice experiment✓✓
Patient satisfaction with careSatisfaction with care survey✓
Costs of ACPCosts of care survey✓✓✓
Satisfaction with interventionSatisfaction with ACP intervention (intervention arm only)✓
The documentation of patient preferences for EOL care and concordance with care received at the EOLMedical record review form✓
Prevalence, timing and location of EOL care documentsMedical record review form✓