Operationalisation of process measures
| Area* | Variable | Operationalisation | Measurement moment† | Data collection method |
|---|---|---|---|---|
| Transfer | Date of transfer | dd/mm/yyyy | T0 | Chart review |
| Availability written transfer | Yes/No | T0 | Chart review | |
| Written transfer recipient | Description | T0 | Chart review | |
| Current healthcare provider | Centre | T0 | Chart review | |
| Medical follow-up3 7 31 45 48–61 | No-show at first appointment in adult care‡ | Yes/No | T1 | Chart review |
| First appointment in adult care cancelled | Yes/No | T1 | Chart review | |
| Scheduled consultations | Number per year | T-2, T-1, T1, T2 | Chart review | |
| Missed consultations | Number per year | T-2, T-1, T1, T2 | Chart review | |
| Time between last appointment in paediatric care and first appointment in adult care | Months | T-1, T1 | Chart review | |
| Hospitalisations related to chronic condition | Number per year | T-2, T-1, T1, T2 | Chart review | |
| Length of hospitalisations | Days | T-2, T-1, T1, T2 | Chart review | |
| Emergency department visits | Number per year | T-2, T-1, T1, T2 | Chart review | |
| Healthcare | Topics discussed during consultations | The need for more attention for discussion of non-medical issues, and the frequency of communication about these topics during consultations | Not applicable | Survey |
*References include general and disease-specific studies that included and/or recommended similar outcome measures to study transition.
†T-2: the second year before transfer; T-1: 1 year before transfer; T0: transfer; T1: the year after transfer; and T2: the second year after transfer.
‡Primary measure.