Operationalisation of the criteria for successful transition31
| Original criteria | Operationalisation: successful transfer if… | Data collection method | |
|---|---|---|---|
| 1 | Patient not lost to follow-up | Young adult attended first planned consultation in adult care: yes/no | Chart review |
| 2 | Attending scheduled visits in adult care | Young adult has no missed consultations in the 2 years after transfer: yes/no | Chart review |
| 3 | Patient building a trusting relationship with adult provider | Young people trust their current healthcare provider: a score higher than 6 points on a 10-point scale | Survey among young adults |
| 4 | Continuing attention for self-management | There is sufficient attention for self-management (including non-medical) topics: average score of 3 or higher on 5-point scale | Survey among young adults |
| 5 | Patient's first visit in adult care no later than 3–6 months after transfer | The first consultation in adult care takes place within 6 months after transfer: yes/no | Chart review |
| 6 | Number of emergency room visits for regular care in the past year | There were no emergency room visits due to acute disruption of the disease in the 2 years after transfer: yes/no | Chart review |
| 7 | Patient and family satisfaction with transfer of care | Young people are satisfied with the transfer process: a score higher than 6 points on a 10-point scale | Survey among young people |
| 8 | Maintain/improvement of standard for disease control | The standard for disease control evaluation is met in the year after transfer: yes/no | Chart review |