TableĀ 6

Outcomes of inclusive health research

StakeholdersAgreementNo agreement
People with ID
  • People with ID having a voice

  • People with ID feeling valued

  • Research questions relevant to people with ID

  • Reduction in health disparities among people with ID

  • Improved healthcare for people with ID

  • Empowerment of people with ID

  • Improved communication between people with ID and healthcare professionals

  • Improved health/increased quality of life of people with ID

  • Knowledge translation

  • Involvement of people with ID in the community

  • Increased health literacy

  • Employment of people with ID

  • Acquisition of research skills by people with ID

Research(ers)
  • Research outcomes suited to the needs of people with ID

  • Research questions relevant to people with ID

  • Increases research validity

  • Increases knowledge among stakeholders

  • Increases understanding of the lives of people with ID

  • Complete picture

  • New way of thinking among researchers

  • Improved choice in research methods

  • Better understanding of inclusive health research

  • Focus on the transformative process of inclusive research

  • Improved communication within a research team

Healthcare
  • Most urgent healthcare issues of people with ID

  • Healthcare suited to the needs of people with ID

  • Increased quality of life for people with ID

  • Improved healthcare for people with ID

  • Improved quality and accessibility of healthcare

  • Mutual understanding between people with ID and healthcare (professionals)

  • Holistic view on healthcare

  • Upskilling of healthcare professionals

  • Knowledge translation

  • Aligns healthcare with the UN Convention on the Rights of Persons with Disabilities

Society
  • Reduction of health disparities among people with ID

  • Social change

  • Addresses problems relevant to society

  • Inclusion of people with ID in society

  • Timely and relevant research for society

  • Empowerment of people with ID

  • Holistic view on people with ID

  • Society respecting/valuing the contribution of people with ID

  • Cost-effective services

  • Employment security for people with ID

  • For each outcome, agreement was achieved when: median=5 (category very important) and IQR=0.

  • ID, intellectual disabilities.