Table 1

PRP involvement according to EULAR recommendations

1PRPs (CH KB and MdW) have voluntarily participated in the process of designing and preparing the study protocol. They have acknowledged the protocol in its current form.
2The PRPs have acknowledged the idea and purpose of the study, and participated in discussions of ethics, design, relevance and feasibility of the content and investigation programme. They have revised all patient information prior to distribution. PRPs and primary investigator (PH) will meet approximately every 6th month until the study is finalised to discuss the process.
3The PrPs suffer from psoriasis and concomitant psoriatic arthritis. One is young (20 years), while the others are middle aged.
4The 2 Danish PRPs were identified during routine care. Prior to their decision of participation, they received a written and oral task description that clarified their roles and expected contributions.
5The PRP exhibited immense interest in the research collaboration and showed good communication skills.
6The primary investigator will continuously consider the specific needs of the PRP, including educational aspects. A safe and respectful environment is highly prioritised and the PRP may contact the research group whenever needed.
7The investigators provide information and appropriate training, including awareness of ethical issues continuously throughout the study.
8The PRP work voluntarily and have been offered coauthorship according to the International Committee of Medical Journal Editors criteria.
  • PRP, patient research partner.