Improved engagement of patients and families in care

Improved patient health literacy

Timely and well-informed treatment decisions, leading to proactive symptom management

Implementation of proactive approach to symptom management

Enhancement of multidisciplinary team care

Knowledge transfer of clinically useful information

Promotion of evidence-based practice

Improved organisational efficiency

Cost savings from reduced emergency admissions

Improved use of resources

Knowledge transfer from research directly to organisations

Links policy to clinical work

Incorporation of evidence-based research into policy

Tools incorporate policy unique to each country

Consolidation of international MND research community

Support for international MND healthcare community

Decision tool dissemination to other deteriorating neurological conditions