RT Journal Article
SR Electronic
T1 Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study
JF BMJ Open
JO BMJ Open
FD British Medical Journal Publishing Group
SP e006986
DO 10.1136/bmjopen-2014-006986
VO 5
IS 5
A1 Hunter, Cheryl
A1 Fitzpatrick, Ray
A1 Jenkinson, Crispin
A1 Darlington, Anne-Sophie Emma
A1 Coulter, Angela
A1 Forder, Julien E
A1 Peters, Michele
YR 2015
UL http://bmjopen.bmj.com/content/5/5/e006986.abstract
AB Objectives To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure.Design Qualitative semistructured interview study, analysed using a framework approach.Participants and setting Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England.Results There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people's engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment and social participation, and be codesigned with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM.Conclusions This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure.