RT Journal Article
SR Electronic
T1 Patient-driven innovations reported in peer-reviewed journals: a scoping review
JF BMJ Open
JO BMJ Open
FD British Medical Journal Publishing Group
SP e053735
DO 10.1136/bmjopen-2021-053735
VO 12
IS 1
A1 Reinius, Maria
A1 Mazzocato, Pamela
A1 Riggare, Sara
A1 Bylund, Ami
A1 Jansson, Hanna
A1 Øvretveit, John
A1 Savage, Carl
A1 Wannheden, Carolina
A1 Hasson, Henna
YR 2022
UL http://bmjopen.bmj.com/content/12/1/e053735.abstract
AB Background Awareness of patients’ innovative capabilities is increasing, but there is limited knowledge regarding the extent and nature of patient-driven innovations in the peer-reviewed literature.Objectives The objective of the review was to answer the question: what is the nature and extent of patient-driven innovations published in peer-reviewed scientific journals?Eligibility criteria We used a broad definition of innovation to allow for a comprehensive review of different types of innovations and a narrow definition of ‘patient driven’ to focus on the role of patients and/or family caregivers. The search was limited to years 2008–2020.Sources of evidence Four electronic databases (Medline (Ovid), Web of Science Core Collection, PsycINFO (Ovid) and Cinahl (Ebsco)) were searched in December 2020 for publications describing patient-driven innovations and complemented with snowball strategies.Charting methods Data from the included articles were extracted and categorised inductively.Results A total of 96 articles on 20 patient-driven innovations were included. The number of publications increased over time, with 69% of the articles published between 2016 and 2020. Author affiliations were exclusively in high income countries with 56% of first authors in North America and 36% in European countries. Among the 20 innovations reported, ‘Do-It-Yourself Artificial Pancreas System‘ and the online health network ‘PatientsLikeMe’, were the subject of half of the articles.Conclusions Peer-reviewed publications on patient-driven innovations are increasing and we see an important opportunity for researchers and clinicians to support patient innovators’ research while being mindful of taking over the work of the innovators themselves.All data relevant to the study are included in the article or uploaded as online supplemental information. Online Supplemental files with the complete search strategy, extracted data by article and an explanation of how extracted data was categorised is available in online supplemental appendices 1–4.